Help with fatiguability

[Southall]

Iam 55 diagnosed with lupus 15 years

Currently on hydroxchloroquine.no system involvement my problem mild joint pain and severe fatiguabiliy....any thing worked for you

Thanks

[PMRpro]

If you look at the top right of this page you will see links to fatigue related threads. There are also a few Topic of the Month articles about fatigue - but I'm being dense and can't remember how to find them, I'm sure someone will help!

But here is a link to a post of mine on another forum with links to resources to help with living with fatigue and explaining it to others:

healthunlocked.com/pmrgcauk......

They are a good read to be going on with if nothing else!

[PMRpro in reply to PMRpro]

And here is a link to the Topic of the Month on Fatigue

lupusuk.org.uk/managing-fat...

[Chanpreet_Walia LUPUS UK]

Hi Southall,

Welcome to the LUPUS UK HealthUnlocked Community!

We offer a free information pack which contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts who you can chat with over the telephone. To download or request this pack click here: lupusuk.org.uk/request-info...

Around 90% to 95% of people with lupus will experience muscle and/or joint pain. We published an article on our blog about pain management which you can read here: lupusuk.org.uk/pain-managem...

Almost 90% of people with lupus report experiencing fatigue, making it one of the most common symptoms. We published a blog article on managing fatigue which I hope you will find helpful: lupusuk.org.uk/managing-fat...

Please let us know how you get on, wishing you all the best.

[leslieliesel]

I understand....I was just Dx'd at 62...the fatigue was a killer...since I was put on Prednisone and Hydrox... I still has fatigue but no where as awful as it was before...I am tapering off of prednisone now.

[Southall in reply to leslieliesel]

Thanks

How lon u been on predinslone

[leslieliesel]

About 2 months +/-...I am tapering now..from 10 then slowly down to 5 mg...The taper hasn't been causing any problems.... I have an upcoming surgery, so I have to get off the prednisone and be 2 weeks clear, until I can have surgery..

[Southall]

thanks

I wonder if things didn't improve without predinslone,is there any ham on 5mg for life??

[PMRpro in reply to Southall]

Probably not, many people are. It is below what is called a physiological dose, less than the amount of corticosteroid the body makes daily to be able to function and it is essential to life. It is said to be equivalent to about 7.5mg pred but the exact figure varies. If you are taking less than that your body makes a small amount to top up the dose to what is needed. So it isn't an excess - and it is excess that causes the problems.

[Southall]

Thanks

This assuring