Letter with Diagnosis - Unsure what Tests mean? - LUPUS UK

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Letter with Diagnosis - Unsure what Tests mean?

riannabri profile image
6 Replies

So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndrome/Sjogrens and Lupus although some of my antibody tests were negative.

What does a ANA Positive 1:320 Speckled and Diffused mean?

Strange as in the biggest flare of my life but CRP and ESR were normal but WBC/Neutrophils were very high, as were Haemoglobin (I assume that is from the Hughes???) also although I was diagnosed from past blood tests/lupus rash pictures and all the symptoms of these disease a lot of my blood tests were normal - is that normal?

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riannabri
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Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi riannabri ,

This page gives a bit more information about the different patterns of ANA - labtestsonline.org/understa...

Blood test results can vary a lot between people and whilst some people may have levels that fluctuate with disease activity, in others this may not always be observed.

riannabri profile image
riannabri in reply to Paul_Howard

Thanks Paul,

I also had a Positive Anti-Cardiolipin IgM do you have any details on that?

AnnNY profile image
AnnNY in reply to riannabri

There is a lot of info on the Hughes Charity website. Also there is a Hughes forum here at HU.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to riannabri

Hi riannabri ,

You can read more about this test at aps-support.org.uk/about-ap...

riannabri profile image
riannabri in reply to Paul_Howard

Thanks Paul - all the buses have come along at once positive for the lot Hughes/Lupus/Sjögren's, being told they can treat the hughes (unsure how) but not the Lupus/Sjögren's - I posted why in another thread - devastating!!!!

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to riannabri

Hi riannabri,

You can learn about the treatment of Hughes at aps-support.org.uk/about-ap...

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