Yozzer

[Yozzer]

Hi I am new on hear can any body relate to having a sore chest and feeling breathless and my voice goes horse .

[Bajalala]

I'm new here too and experience the same. I haven't had good lung capacity in a long time & im hoarse practically every week. Wether I'm sick or not. I have pain in my chest around my sternum and pain when I get winded and my blood pressure is super high. What kind of chest pain are you experiencing? I see the rheumy for the first time on Tuesday. I'm sorry I can't be of much help but I understand what your going through 👍🏽✊🏼

[Yozzer in reply to Bajalala]

Thanks for the reply my chest pain is central and if I take Deap breath or laugh I get breathless and a sore feeling to chest as though I've been coughing for ages.

[Bajalala in reply to Yozzer]

Hmm, sounds like it may be pleurisy which as you may or may not know is very common in Lupus. I suggest you mention it to your asap as it can become dangerous very quickly. Take care! 👋🏽

[Yozzer in reply to Bajalala]

Thanks I have an apt tomorrow with GP to get checked out

[Bajalala in reply to Yozzer]

Hope all goes well and you get some answers. Would be interested to know what you find out?

[johare]

Whats your diagnosis? Many people with Lupus experience chest pain. I have sjorgens and thyroid problems as well so I have hoarseness and dry throat due to that.

[Yozzer in reply to johare]

I bit of a long story I had my nhs apt with rheumatologist 3 weeks ago but I also had a private apt with prof Bernstein who is a lupus specialist a few days later these was my first apts after my go referral I am so and glad I kept my private apt as my nhs apt was not good really she gave me a steroid injection for my pain and started me on hydroxychloroquine and said tabs will take 4 to 5 months to work so I will see you again in 5 months time and I was sent on my way as she was running an hr late I was not able to ask her any questions,so 2 days later I went for my private apt and I'm so glad I did ,consultant said I need to go on aspirin straight away as I have lupus anticoagulant which means I have sticky blood at at higher risk of clots it stroke I have all the other usuall lupus symptoms but because my ANA & ENA have come back negative I have been labelled with UCTD but he has referred me to the lupus centre at Manchester royal so hopefully on the right road

[johare in reply to Yozzer]

That all sounds pretty standard. Both the nhs and the private docs did the right treatment and at least the private one picked up on the anticoagulant. I agree the meds do take that long to show significant difference and sometimes side effects to get through. Make sure you keep both docs informed with separate treatments so they don't get confused as Ive been there. They are not keen on it. Until the meds kick in and the condition settles (not that it really does) but until you get a handle on your kind on auto immune what ever it may be, keep notes of how you feel. Things come and go and you will forget. Anything concerning go to your gp. All the best.

[Nickymck]

Hi Yonder

I am on Methotrexate 20mg weekly. I often have a sore chest,right side comes and goes. As does the voice and the sore throat. Could be the lupus could be a the metho but never bad enough for docs to investigated the further. I hope you ate not in too much pain. Worth getting it checked out. Nicky

[Yozzer in reply to Nickymck]

Thanks for the reply I'm not on methotrexate I'm on hydroxychloroquine which I have only been on for. 3 weeks to be honest I had these symptoms before I started meds so yes maybe it is the lupus

[Nickymck in reply to Yozzer]

I am on hydroxy too. Possibly the lupus then. Ask at Rhumy or GP. Lupus can cause so many symptoms and no 2 people are the same. Always ask if worried. No silly questions with Lupus.

[misty14]

Hi yozzer

Welcome to the UCTD club, there are a lot of us with it on here!. I too get the chest symptoms and hoarseness you describe and been diagnosed with serositis, inflammation of heart and lung lining. I take colchicine for it , a stronger anti- inflammatory that really does work. I'd suffered for years before getting this drug!. Your consultant will be able to test and treat you for this. Thank goodness you went to private one and he's referring you to a lupus centre. I'd stick with this one as you won't be able to juggle two consultants. Just as Johare has said , keep a note of any new symptoms as these illnesses can change over time. You should be well monitored with a diagnosis of UCTD. Good luck with Manchester and keep us updated. x