Infusion hurrah!

[weathervane]

In the day unit connected up to rituximab!! I wasn't sure if it would be happening today but came prepared with kindle, warm cardigan , eydrops and lipsil . I hope i it has a good effect again. The staff are all lovely here , the worse thing at the moment is going to the loo as the drip has to go with you. Will up date on how it all goes xx

[Barnclown]

👍👍👍👍 YAY WV! 🌈🦄🕊🌹🍀😘

[weathervane in reply to Barnclown]

Thanks barnclown😀🌷 . Should be finished in another hour then home to bed💤

[Barnclown in reply to weathervane]

Rest well...hope you can go extra gently for a few days...am looking forward to your updates 🍀😘

[weathervane in reply to Barnclown]

I don't think i will have much choice! My eyes keep closing and I don't want to fall asleep yet in case the heavy breathing starts 😴💤💤💤

[Barnclown in reply to weathervane]

😂😂😂😂

[Leemaree44]

Hi weathervane ... what is rituximab? I note you're in the lupus forum ... i have FM and UCTD - i find it interesting to hear about various treatments 😁

[weathervane in reply to Leemaree44]

Hi there , have sjogrens with the added joy of muscle and joint pain and enlarged lymph nodes! Rituximab is a biological treatment so im hooked up intravenously today with another in 2 weeks. It takes most of the day by the time you are sorted. It really made a difference the last time so fingers crossed xx

[Paul_Howard Partner LUPUS UK in reply to Leemaree44]

Hi Leemaree44 ,

You can read a lot more about Rituximab if you are interested at arthritisresearchuk.org/art...

[weathervane]

Hi paul, i am very bad at putting up websites! I had a good weekend after the infusion but don't feel so good today. I feel a bit weak and light headed, i was expecting this as happened the last time so will be having a quiet day. 😀

[Hidden in reply to weathervane]

Hello I'm so sorry this slipped past me W! I looked you up just now to see how your consultation went and whether you got your infusion - so pleased that you did - and more importantly - I hope it's working? Xx

[weathervane in reply to Hidden]

Hi there , generally it went well but developed a chest infection so was feeling a bit rough ! Didn't have the gastritis i had the first time , so get 2nd one on Monday hopefully the antibiotics will have cleared my chest 😀Hows life with you , have you had the tinnitus app ??

[Hidden in reply to weathervane]

Oh no about the chest infection - hope it's fully clear so you can get second infusion on Monday. I'm fine but it's been like doing the Anika Challenge - on my own trying to get so much achieved all in a week. Back home tomorrow - will post over the weekend re tinnitus counselling, optician and other. Xx

[weathervane]

Oh oh ! Showing age with the Anika challenge 😳I used to watch that. Hope you get home safe x