Not yet diagnosed need some help please.

[Ems666]

Hi all I'm new on here and would like some help if possible.

For a good few years now I've been suffering a number of aches and pains doctors all ways seem to fob me off. I will list symtoms that I get and see if any of you could shed some light on what's going on.

From young age I've always suffered from anemia on and off.

My whole body is stiff in the mornings takes a few hours to feel ok.

. Really bad neck pain shoulder blades pain.

. Headaches from back of neck that go upto back of head and also get like sharp random pains in head

. Chest pain that goes into my back when breathing.

. Random hot flushes and suffer bad with nights sweats

. Really bad dry eyes and mouth

. Feel itchy all over most the time

. Really bad fatigue also struggle to fall asleep as pains tend to start when I go to bed.

. Random pains in joints eg knees is one an wrists .

. Suffer bad with stomach really bad pains most of the time.

. My glands in my groin neck and under arms flare up for no reason and become pain full when glands ache under my arms it makes my arms go dead.

. Keep getting twitching in my left knee.

. Cold hands and feet especially in winter nothing I do can seem to warm them up.

. When I get hot flushes or I'm in the sun I get the butter fly rash not really bad but you can see its there.

. Most days I get random sharp pains all over body these can feel like burning sensations to sharp electric shock type pains.

I suffer from anxiety and depression and doctors always put it down to that which is getting really frustrating now this has gone on for years. I need to no what's going on.

Had blood test about 7 months ago showed I had very low vitmin d levels and anemia again but been taking tablets for both for past 7 months and still no improvement with all these symtoms I keep getting.

Just had some more bloods done to test for lupus and sjogrens and other things but waiting on results doc has also mentioned about referring me to rheumatology.

Any help or advice would be grateful for as this is driving me mad and have 3 children to look after which is a struggle when I'm experiencing all these different symtoms.

Many thanks Emma.

[minka]

Hi Emma sounds like lupus and soregens to me your bloods can come back normal ever one of us is different and mine starts to worsen round about 9 go to bed can hardly sleep

The pain in your feet can be due to nerves called neropathy if they go cold then burn like the thermostat has gone wrong also this can come from back or thorax of back do you have any tingling sensations with it. Do u have any dryness of mouth or dry eyes write all your Simpsons down for when u see someone. Also a y module of inflammation on fingers is also a sign. Lupus can manifest or a virus in various ways.

[Ems666 in reply to minka]

Hi thanks for your comment.

I suffer really bad with dry eyes and dry mouth and mouth and nose ulcers.

Don't get any tingling sensations tho.

I don't get symtoms all at once just randomly one day I can be OK the next I'm really bad but I've always got dry eyes and mouth and chest pains come and go throughout the day.

I've just had blood results back and there all normal so what do I do now what is the process for getting diagnosed this is so frustrating and think the docs are getting sick of me going in all the time.

Many thanks Emma.

[minka in reply to Ems666]

Em I think you need to ask for a referral or demand a referral to a rumi specialist their is something going on here that needs checking out dry eyes is one give away and dry mouth another sounds like soregens to me that part of you problem one good think to try for the dry mouth try to get hold of some sugar free gum may sell at chemist. This will help with any tooth decay due to.dry mouth regards john

[Paul_Howard Partner LUPUS UK in reply to Ems666]

Hi Ems666 ,

I would push for a referral to a rheumatologist so that you can have further investigations for your symptoms. If you'd like to request a referral to a lupus specialist, let me know where you live and I can provide you with information about any who may be near to you.