Interesting article

[jacqueline121]

I found this article online and thought it might be of interest.

bbc.co.uk/news/uk-england-k...

[Paul_Howard Partner LUPUS UK]

Just so you know, there was a further follow-up to Kirsty's story where a doctor at Guy's Hospital has decided that she does not have lupus - dailymail.co.uk/news/articl...

[jacqueline121 in reply to Paul_Howard]

Thank Paul, I've just had a look. I was bitten many times as a teenager living in Scotland. It makes me wonder.

I hope she gets a diagnosis soon.

[Paul_Howard Partner LUPUS UK in reply to jacqueline121]

Insect bites aren't recognised as a cause of lupus, but some infections can potentially trigger it. You may be interested in our blog article which we published the other day about insect bites and lupus - lupusuk.org.uk/lupus-and-in...

[AnnNY]

I just read her GoFundMe page, and did some research. She was told by Dr. Cruz at Guys (?) that she didn't have lupus and to forget Lyme disease. Now she is going to a very expensive center in Florida. The doctor sounds like one of those scam artist doctors that crop up in the US occasionally that cure cancer through detoxification and stuff like that.

Poor girl, whatever is wrong with her. I hope she finds a doctor who can help her, or the hocus pocus medicine she is receiving in Florida helps her somehow.

[jacqueline121 in reply to AnnNY]

Thanks Paul and thanks Ann, I hope they update on her diagnosis and results.

[Patricia2015]

Thanks.

Her symptoms very much sound like Lyme's more than SLE to me. I hope she will get the approriate treatment soon.

[Natura]

I would exhaust every avenue before doing that. Can't a family member take her to a naturalist ,and treat with anti inflammatory diet and herbs? I just started one from a doctor in chicago, and feeling pretty good after only 3 days. A lot of phlegm is coming up out of my lungs, and I am breathing a lot better than I have been in awhile. Also, no chest pains which i was probably getting from trouble with my lungs. I am on this diet for 90 days. Maybe for life if it works. Many people get diagnosis' of not surviving cancer from their doctors. After juicing and changing diets they are still around. I have talked to many people here that having beaten cancer. Why not lupus?

[Paul_Howard Partner LUPUS UK in reply to Natura]

Hi Natura , a few people may be able to manage (or help manage) their lupus with lifestyle changes such as diet and exercise. It is very important to remember that lupus is extremely varied and affects people with different symptoms at a range of severities. Many people with lupus do require medication to help control it. About 40 years ago about 50% of people with lupus would live at least 10 years following a diagnosis, that figure is now over 95% thanks to advances in treatment and monitoring of the disease.