Raising awareness for Lupus

[Kevin53]

Increase awareness for Lupus and other hidden illnesses.

[magSLE]

Hi Kevin53, I used to ignore having Lupus cos it didn't affect my lifestyle. I've been seriously ill with it for last 5 yrs & it's triggered 9 other conditions,

Sharing awareness of autoimmune conditions is important so that people know what they are, how they can affect daily life & the importance of work, life, mind, body, spirit balance as one affects the other.

On May 14th, God willing I will be getting involved with my 1st Lupus Awareness event - a lunch for members, family, friends & supporters which is being organised by my Lupus Support Grouo in London.

Let's continue to create awareness  for all. Knowledge is power so let's empower ourselves 

[Paul_Howard Partner LUPUS UK in reply to magSLE]

Hi magSLE. I hope you have a wonderful time at your first lupus awareness event. Thank you so much for supporting the charity. 

[magSLE in reply to Paul_Howard]

Thanks Paul & thank you for supporting us members & the charity. Your diplomacy, knowledge & empathy is much appreciated.

[Referalgirl]

I have Lupus..I didn't get any symptoms until 5 years ago triggered by a tragedy in my life.my more serious symptom is the inflammation and sores in my mouth.any suggestions?

[magSLE in reply to Referalgirl]

Hi Referalgirl, I don't have any suggestions of treatment for the inflammation & sores in your mouth. Have you told your Rheumy or GP? What did they recommend, I suggest that you write a post about it for advice fr members, I'd be interested to learn more. Best wishes to you x

[Paul_Howard Partner LUPUS UK in reply to Referalgirl]

Hi Referalgirl , we wrote this article a few years ago and compiled tips for coping with mouth ulcers from lots of people with lupus. I hope you find it helpful. healthunlocked.com/lupusuk/...

[Wendy39]

Hello. Raising awareness is really important. I had never heard of lupus until my husband told me he thought I had it. I now wear my purple Lupus UK wrist band every day and openly talk to people about at work and with my friends etc. Three close friends have run marathons and half marathons to raise funds and awareness too. I don't want sympathy. I just want to raise awareness. I will be taking a cake and the Lupus UK raffle tickets to work next week for World Lupus Day (hope I got that title right!?!) Let's hope it helps someone get a quicker diagnosis etc. 

[Kevin53 in reply to Wendy39]

Thank you Wendy.

[Kevin53]

Hi magSLE . Have a great lunch next week. Thank you for being so active on the awareness journey.