Lupus symptoms

[droberts52]

I want to find to talk to others about their Lupus symptoms.

[Chris21]

Hi, what symptoms are you experiencing? Have you got a diagnosis or just researching. There are lots of leaflets that can tell you about the different ways lupus can affect you.

It was realised I had lupus from getting pancreatitis but others have many different problems.

[droberts52 in reply to Chris21]

I have seen several Rheumatologists,last one was at John Hopkins this past week. I have been having nausea and gagging and loss of appetite. Has anyone else mentioned this ?

[droberts52 in reply to droberts52]

Yes,I was diagnosed last summer with Lupus.

[LUPUSadmin]

Hi Droberts52,

Lupus UK has a number of support groups in the UK. You can find a full list of the support groups here and locate your closest one: lupusuk.org.uk/regional-gro...

Full contact details for thos groups can also be found on that website.

Have you been recently diagnosed or have you had lupus for a while?

George

[droberts52 in reply to LUPUSadmin]

No, I was diagnosed last summer, but had a second opinion from a Dr. at John Hopkins this week.

[Chris21]

I have these problems from time to time. I'm not sure if it's because of lupus as we seem to get quite a lot of strange things happen that come and go. Today I feel like I have an elephant sitting on my chest. I am going to docs later but I know they won't find anything (I go just in case...) sometimes you can feel like you have flu but it's gone the next day.

Possibly your loss of appetite is because you feel nauseas and gagging because your throat might be dry?!

You said you got diagnosed last summer, that's early days in auto immune world. Don't be surprised if they begin to add other auto immune deseases on try not to panic though as they are just conditions that are part of the pattern.

I went from lupus sle to also sjogrens, sticky blood and raynaulds (think that's all) when I'm tired I forget everyday things and names.

It all sounds 'oh dear' but it isn't, I still work, play with my grandchildren and keep up with my hobbies, with an occasional nap! So it isn't all doom and gloom.

Since taking hydroxychloroquine asprin and paracetamol ive only had a few blips.

Persevere and I hope the nausea and gagging will pass soon, if not talk to your gp there may be something that can help.

If you haven't joined lupus uk, I recommend it. It's thebest ten pound I spend every year. Lots of help and support, as well as the some of the lovely people on this site. 😀