Heads up: British Sjogren's Syndrome Assoc. Winter mag has GRRRREAT article on Systemic disease in SS and its management

[Barnclown]

My edition arrived in the post this week. This article is on p6-7 and is by a Dr Elizabeth Price. Am figuring it's mainly about primary SS, but much of what is covered definitely relates to my supposedly secondary SS. She devotes meaty paragraphs to each set of symptoms, from fatigue through urological & renal issues to gyn probs. Then she considers treatments, from hydroxy to myco & ritux. It's all very clear & concise

I wish I could post it on forum, because so many of us have SS in our mix...but I'm not tech savvy enough

But at least I can tell you that my BSSA membership has helped and continues to help me a lot to understand and manage my SS issues AND to discuss them confidently with my various clinics + doctors

Has anyone else read this issue of their mag? If yes, it'd be interesting to know what you think

🍀🌻 Coco

[SjogiBear]

I was able to hear Dr Price talk in person about Sjogrens a couple of weeks' ago - she was summarising the BSSA conference that took place this autumn. The charity does get a bit 'funny' about people copying and pasting from their magazine so I would just encourage anybody who has a lupus/sjogrens overlap to join the BSSA bssa.uk.net/ where you can alway access the most recent copy of their magazine. (BTW she's my rheumatologist and I know the general rule of thumb on here is not to discuss specific doctors but I do have to say she's absolutely wonderful!)

[Barnclown in reply to SjogiBear]

WOW👏👏👏👏👏! So glad you've explained about the online BSSA mag access...and GOSH: isn't it great Price is helping you a lot!

One of the best things I've ever done is join BSSA: the mag is always full of really good meaty articles

Thanks so much, sjogi👍👍👍👍👍👍

[SjogiBear in reply to Barnclown]

You're very welcome Coco - you always have lots of interesting information to share on here as well - I always look out for your pretty photo!

I have just checked out the link on their website and the BSSA have still got the previous magazine showing on their link - they obviously haven't updated it to the issue which has just arrived in the post. It's a shame you can't access previous issues though as I'm sure there must be a lot of interesting articles there for reference. bssa.uk.net/information.asp - the mag link is at the bottom of this page

Do you go along to your local meetings? I have attended a few but they are not held at the best time for me - I do try to go to the annual conference summary talk though as there's lots of useful information. The conference is being held locally to me next year at our hospital so I will be going along to that one! Hana x

[Barnclown in reply to SjogiBear]

Thanks hana: am glad of this link & feel sure others will be too. You must be psychic: have been thinking about checking our local group out...will also look into the conference. Sjogrens is such a big part of so many of our lives...this info gathering & sharing is vital. The joining together at groups & bigger events is wonderful on so so many levels. Am so glad you're here XO

[lupieibbie]

Thanks Barnclown for all the 'digging' (no pun intended) you do to unearth (taking it too far now!) all these pearls. Much appreciated. Think I'm off now to subscribe to the BSSA.

p.s. love all your emoticons!

[Barnclown in reply to lupieibbie]

👍👏😘❗️

[chrisj]

Haven't heard of it Barnclown, dont know anything about it...I have SS and mild SLE both under control, cant remember the last time I had a mouth ulcer but its useful to know what we're dealing with....I'm guessing you had to pay a yearly subscription to get the magasine????

[Barnclown]

Yes, you need to pay the BSSA annual subscription to get the mags in the post. Slogibear explains above that the current issue of each issue of the mag is on the BSSA website

Also, slogibear's post takes you to the BSSA website where you can find out how to join:

bssa.uk.net/information.asp

Hope that helps chris