Hi starting 2 get a lot of headaches had lupus now 4 bout year and 7months, never suffered with headaches like this b4 is this normal? Been in bed last 2 days sick and this is one of the things that is driving me mad! Any tips 2 get rid of it or even take the ease off, pain killers ain't working no more!
Ruth
I have always suffered with headaches and have migraine pills on prescription even though they are not strictly speaking migraines. They do the trick, even over the counter ones like Migraleve.
sometimes heating pad or ice pack help me. Sometimes nothing helps except maybe dark room and sleep. hugs 
Hi Ruth. I would mention them to your rheumatologist. I was sent to see a neurologist as mine were really bad with black outs and funny things happening in my head. Luckly it wasn't a form of epilepsy but was migraine from the lupus. I now take nortriptyline for them. Its important your lupus is under control as my neurologist cannot help with mine any further until he has confirmation of this. Mine has gone on to me getting neuropathy so am now waiting on my two consultants. Good luck and hope you get storted.
Is that the headache where you can see and feel your pulse in your head?
I'm having one of those, has lasted 3 days now. If anyone in Australia can recommend some pain relief that works id be ever so grateful.
Hi Ruth,
I was suffering from really severe headaches, my gp has put me on amytriptyline, it worked brilliantly at first but unfortunately the headaches returned, he has increased my dose from 10mg to 25mg hopeing this works. See your rhymy or gp and get help I know how debilitating they are on top of everything else we put up with. Take care hope you get sorted soon xxxxx.
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