O.A ?: Has anyone else been told they have onset of... - LUPUS UK

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O.A ?

amandajane76 profile image
15 Replies

Has anyone else been told they have onset of O.A at a younger age.i am 39

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amandajane76 profile image
amandajane76
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15 Replies
willow80 profile image
willow80

Hi

Thinking back I believe that was the age my bones/joints started to cause issues.

I believe mine was due to a mixture of long time use of Prednisolone and dance.

I am now in my 60's and have had two knee operations and have damage to my spinal column/ neck.

It doesn't mean you will have the same outcome, you need to take care of your body and make sure you rest and do exercise (gentle) when you can. Sitting or resting is probably the worst thing for you as you tend to stiffen up.

Do listen to your doctors and possibly they can recommend the amount of exercise you can do.

Do take care and hope all goes well.

crazyk profile image
crazyk

I have just had OA confirmed but I have had it a few years. I am 43. My rheumatologist is fairly hopeless and just said everyone gets OA! She therefore doesn't bother to treat it either. My podiatrist explained that the lupus puts you at risk of an early onset. I think I have read somewhere that you don't tend to get the same type of joint destruction, although I have nodules on my fingers.

I see a chiropractor who is recommending some exercises to help my ankles which will hopefully reduce the pain, stiffness and nerve compression. Sitting still for too long definitely makes it worse. Swimming us meant to be very good as the water supports your joints. I'm just a hopeless swimmer!

Barnclown profile image
Barnclown

Yes. Mine started to be a daily prob in my mid 20s. Feeling for you. Keep that chin up👍🍀🌻

Heatheric profile image
Heatheric

Yes I have OA and find the best thing for me is regular yoga - you don't do more than you feel able to do but it definitely keeps my joints supple and helps to strengthen the muscles all round.

janann profile image
janann

Hi. I started with osteoarthritis in my 30's. Its not very nice to be told this so young but it may never get any worst. Mine is made more complicated my my Lupus and have it in most joints and had a complicated hip operation 2 1/2 years ago when I was 58. Hopefully yours won't get as bad.

georgie63 profile image
georgie63

Hi I too suffer with OA and Lupus.

My knees are just terrible and I have daily pain and discomfort, but every six months I see my physiotherapist for a steroid injection which I have in both knees.

It just about lasts six months but you are not allowed more than 3 injections in a year, for some reason.

But I must admit it does help, I still get pain don't get me wrong but when my 6months are coming to an end my pain is definitely sharper and I know I need my next injection.

Perhaps this may help some of you with similar pain etc.

Xxx

flow4 profile image
flow4

My OA was first diagnosed around that age, perhaps a bit younger. I'm hypermobile and overweight, which are both risk factors for early OA.

Whathappned profile image
Whathappned

I think mine has started in the fingers. I'm 47 and noticed it on and off for a few years now. I've no major changes in the joints they just ache. My mum started with this around the same age. I remember as she loved to knit and stopped. Slowly her fingers joints have changed shape. She's 86 now and very swollen joints.

I often wonder if it's in my spine too. I have been stiff for years. I've had a couple of back injuries so that could be soft tissue related.

I suppose OA is age related as it's generally due to wear and tear of repetitive stress on the joints. Unlike rheumatoid arthritis which has much more systemic affect and changes to the synovial fluid in the joints.

It's great isn't it. Pain in hands, feet, knees, hips and back. I feel like a zombie when I get up in the morning lol

misty14 profile image
misty14

Hi Amandajane

I too was told I have OA changes in my spine in my thirties. We are more susceptible to this having lupus . I hope they find a good treatment for you. X

Wendy39 profile image
Wendy39

Hello. I started getting problems with my hips in 2012, when I was 38 and then had an operation in 2013, when I was 39. We are lucky that we have private health care with my husband's job. I had a hip arthroscopy on my left side, I had lesions/nodules that had grown on my hip ball socket and with the running I was doing (training for half marathons) the nodules had rubbed and ripped my hip lining. I had a key hole procedure to remove the nodules and repair the lining. That operation worked very well. Apparently I was probably born that way and the problems won't come back. But the recovery was painful & hard and apart from anything else I slept every day for 6 weeks, I was all in. The NHS had xrayed me and told me there was nothing wrong with me and no treatment required. I could barely walk by the time I had my op. Anyway, during this diagnostic procedure I had MRIs done on both sides and got told I have extensive OA both hips. My consultant couldn't work out why it was so advanced for my age. He initially thought I had been running heavily all my life but no, I had taken it up to lose weight after my 2nd child, aged 30, so has only been running on and off for 8 years and I was a plodder! Only ever did 3 half marathons, 5k was more my thing. Then in November 2013 I was diagnosed with SCLE (overlaps SLE and DLE). The consultant said it made sense. That was why my OA was so bad. I have done a lot of reading etc as the whole thing with RA and OA and lupus still confuses me. RA being an inflammation type arthritis that usually doesn't damage the joints. OA being wear and tear arthritis where damage to the joint and cartilage is done. I think most doctors says only RA is caused by lupus, no OA. But the inflammation caused by lupus doesn't help OA. But recently I have read that doctors thoughts are changing with this and there may be a direct link with lupus and OA after all. I have a CRP level of 6/7 all the time. It is not a level that needs action but it should be 5 or less (I know some peoples rise into the 100s with flares, so my constant slightly raised level is not significant) but I have read that this low level inflammation can highlight OA. I have since had X-rays on both knees on the NHS, even though my rheumy says she can feel the OA, (confirmed by physiotherapist and current GP) the X-ray report said all clear, no action required. I now get hip, knee and hand pain every day. Whether it's stabbing pain, or a heat in my knees, or an aching in my hands, my knee gives way etc. Our medical insurance will not monitor a chronic condition - so not my lupus or OA. And NHS don't seem to want to really help, although just got short course of physio-2 years on from my initial problems. I think it is very short sighted, as the way my OA is going, I have been told I will need both hips replaced, before my time. So it's likely due to my age, that I will need ops on both sides and those to be replaced, as they don't last forever! I also have the nodules on my right hip but am symptom free at present - but may need that one doing at some point. Oh and the GP wants my varicose veins operated on. She can't understand why I say no. The thought of my hip operations is enough can't bear veins as well. I wonder if the general anaesthesia contributed to my flare up and diagnosis in November 2013. I am only on hydroxychloroquine and wonder if I should be on methotrexate, in an attempt to control OA progression that way? I know it is a harsh drug but if it means delaying a hip replacement as long as possible, I think it may be worth it? One piece of advice - I asked my consultant about cod liver oil and supplements. He said cod liver oil would do me no harm but he isn't allowed to actually recommend it. He did however strongly recommend the maximum daily dose of glucosamine. So I so take this every day. From the reading I have done, studies now prove that this actually increase the gap between the bones, that wear and tear has decreased and caused the pain.

Wendy39 profile image
Wendy39

I didn't finish before it posted. Sorry. I apologise for the long reply. I guess because it is such a big part of my daily life, I do take an interest in all posts relating to OA. It helps to share info and the support on this site is so important to me. Stay in touch. Wendy

ijeasike profile image
ijeasike

Please what is O.A

Wendy39 profile image
Wendy39 in reply to ijeasike

Osteoarthtiris - OA for short.

ijeasike profile image
ijeasike

Thanks

Hi..I have Lupus and OA,too.especially in my small joints,hands,fingers,feet.My MD just prescribed Celebrex for the OA.Anyone used this before?Thanks...dunkxx