Lupus spectrum

[Sugarplumb]

I have just seen a rhumertoligist and he said I am in the Lupus spectrum and he is going to start me on cortisone injections will this help and any side effects from these please ???

[misty14]

Hi Sugarplum

I'm interested that your illness has been described as the Lupus Spectrum. Did the Rheumy explain what that is?. Diagnosis for me has always been difficult so I'm curious that's all!.

I'm glad your starting on treatment, the cortisone should be very helpful if you've got inflammation. Need to allow 48 hours after the injection for it to start to work,you should feel much better which I hope you do. X

[lorac1]

Hi sugarplum. I have never heard of the lupus spectrum, did he tell u what that meant? It took 15 years to diagnose me, maybe I could have had an answer sooner. Good luck with the treatment. X

[pouy]

Hi Sugarplum, I am also curious of the diagnosis, because i was also told I was in the Lupus Spectrum, or that I was lupic (i live in France), The rheumy said there was an anomaly in my blood tests! At the moment I am just taking anti-inflammatories. My daughter has Lupus and takes Plaquenil which for her has been a wonder drug, she is just 14. Good luck with the medication. x

[Paul_Howard Partner LUPUS UK]

Hi Sugarplumb,

If you have a lupus or a lupus-like condition then it is likely that the cortisone injections will be helpful for you. Steroids are very effective at decreasing levels of inflammation and relieving flare symptoms. If you would like more information about lupus please let me know as I would be happy to send you one of our free information packs. Just send me a private message or email [e-mail] with your name and address.

[Whathappned]

Hi

I have had the steroid injections and found them very helpful. I have not got a diagnosis but I have been started on Hydroxychloriquine and more recently methotrexate. It did however make me rather manic for a short time. It was brill I was full of energy and able to do everything I wanted. As I understand things the injections have less side effects than tablets and they will limit how many you can have in the 12 month period.

The injections seemed to help with the inflammation as my bloods improved and that helped in their decision on what steps to take as far as medication was concerned.

I hope this helps x