1st day at work

[ijeasike]

i finally decided to starr my voluntary work yesterday. although i was 35mins late (am i bad). i felt good and responsible. after 3yrs of being off work am doing something and i love it. pls pray for me that my lupus will go for a long vacation and let me carry on working.

xx

[BARTLETT27]

good on you. hope it all goes well. Please don't take this the wrong way. But what ever happens with your Lupus , you have made one of the biggest moves / decisions you are going to make with regards you and your illness and how you let it affect your future.

You can let it rule your life or you rule it.

Again , hope the management are understanding and assist you as much as possible and that you don't come up against the biggest problem, the benefit Department. trying to stop you like they usually do.

Look up and forwards , with the attitude that their nothing can stop you. Hope that a permanent employment comes from it , if that's what you require.

Jeff.

[ijeasike in reply to BARTLETT27]

thank you for the advice

[misty14]

Hi Ijeaslike

Great to read you started your voluntary job and enjoyed it!. It will give you such self confidence . Fingers crossed Retuximab keeps the Lupus away and thanks for sharing and inspiring us. X

[ijeasike in reply to misty14]

☺thanks for your kind words

[daisyd]

H

[magSLE]

Thx for sharing your positive news! I've had 5 yrs off work due to active Lupus & relentless illness. My meds including Mycophenlate are still being adjusted. Voluntary work is a great way to get back into working & to see how you can cope with environment & living with Lupus. Good luck to you! Working with people who understand makes a big difference & helps to maintain health. I was working as a Secondary school teacher & love working with young people but the other issues (lack of support, constant changes, poor mgt) are too stressful. Do they know you have Lupus? It's always a dilemma as to whether to tell the employer or not at interview. Once my health is more stable, voluntary work may have to be my 1st option so I can get my confidence back & try various roles to find out which suits me so I can remain healthy. It's important to nurture mind & well-being esp in the workplace. Thx for the inspiration!

[ijeasike in reply to magSLE]

yes i told at the interview that i have lupus. it also in my hospital that the work is in . they are really understanding. i pray u get better too and do some voluntary work. hugs and kisses☺

[magSLE]

Thx for your reply x