Desperate

[cindy2616]

I have been sent to every kind of doctor imaginable. I have had plaque psoriasis since I was 17. I'm now 59. I have experienced vertigo, numbness in legs, feet, and hands. Tingling. Migraines since I was 17. Still get them.very bad pain in my knees. Tiredness and horric head sweating. Is there anbody else?

[a_Scot]

Chronic migraines in a autoimmune person : check for antiphospolipid antibody syndrome, (aka Hughes syndrome), and cerebral vasculitis ( probably as part of systemic-vasculitis due to hyperglobulinemia caused by autoimmunity ) ...

"Secondary antiphospholipid syndrome occurs with other autoimmune diseases, such as systemic lupus erythematosus (SLE) ...There are also associations between antiphospholipid antibodies and headaches, migraines ..."

en.wikipedia.org/wiki/Antip...

"Cerebral vasculitis ... is vasculitis (inflammation of the blood vessel wall) involving the brain and occasionally the spinal cord. It may produce a wide range of neurological symptoms, such as headache ... More commonly, the disease occurs in the setting of other medical conditions ... connective tissue diseases such as systemic lupus erythematosus (SLE) ..."

en.wikipedia.org/wiki/Cereb...

[cindy2616 in reply to a_Scot]

Thanks scot. I'm new here and I had a Lupus test, ANA and other bloods done yesterday. No results yet. They also did a chest exray. Do you think I have Lupus? I have really bad, bad psoriasis on my heels and hands. Also on joints. Very painful. I am totally lost with so many Dr. Appts. My Dermatologist put me on Stelera. I just had my first shot. humira did not work for me. I have been in and out of hospitals for chest pain. They said it was a virus of pleurisy around my heart . Nothing they do for that. That was years ago. What do you think? I think the profuse sweating several times a day does me in. I am a nanny for a little one.

[Hidden in reply to cindy2616]

Has anyone mentioned Psoriatic Arthritis (PsA) to you yet? I have a friend with this and she gets many neuro symptoms too ie extreme dizziness, tingling, migraines, severe tinnitus. No one yet knows why and she is being tested to see if she also has MS. Her ANA is negative though so she has assumed this isn't Lupus.

I also know someone of who is getting brilliant results for their psoraisis from Methotrexate.

[a_Scot in reply to cindy2616]

Antiphospolipid antibody syndrome, (aka Hughes syndrome), was discovered in people with lupus,

but is not exclusive to lupus , ( there is a blood antibody test for Hughes syndrome).

The syndrome causes headaches and MS-like neurological symptoms ... hughes-syndrome.org/about-h... it is readily treatable.

Autoimmune vascultits could occur in any person with autoimmune disease , ( e.g. lupus , rheumatoid arthritis, aka rheumatoid vasculitis, etc ). Antibodody and other tests exist to diagnose autoimmune vasculitis. It is treatable with anti-inflammatory and/or immune-suppression therapies.

If you have autoimmune disease and have had migraine headaches for decades, my suggestion would be to ask to be tested for Hughes-syndrome and autoimmune-vascultits, both of which can effect the blood flow to the brain (and elsewhere), and are prime-suspects for the cause of headache and neurological symptoms in a person with autoimmunity, and are both treatable.

Bear in mind there are a number of lupus-like autoimmune diseases which can "overlap" ... en.wikipedia.org/wiki/Overl...

[cindy2616 in reply to a_Scot]

Thanks a _Scot,

You are a great help. I put a call into my dermatologist (who sent me for the Lupus and lymphoma blood tests) . I I'll as him about the Hugh's blood work. Thanks!

[misty14 in reply to cindy2616]

Hi Cindy

So sorry to read of your health problems. Fingers crossed your bloods show something that can be treated. Tough enough you have had psoriasis for so long.

Pleurisy can be treated successfully with steroids as it's inflammation to do with the lungs!.

Will you see your Consultant again for the test results?. Sorry I can't help with the sweating, that must be awful. Good luckX

[cindy2616]

Hi Twitchytoes,

Yes I have already been diagnosed with psoriatic arthritis. I seem to have a lot of neurological symptoms. My main problem right now is my profuse head and face sweating everyday. It disrupts my life. Especially at work.I'm so glad I have you guys to talk to.