any men on here with lupus I have lupus and lupu... - LUPUS UK

LUPUS UK

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any men on here with lupus I have lupus and lupus nephritis and lupus epilepsy. suffered since early 20,s had rheumatoid arth. from toddler

Andrewc profile image
6 Replies

don't seem to see any other males with it

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Andrewc
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farmerfester profile image
farmerfester

There is some males members with lupus me included sorry to hear of your lupus issue,s g

Andrewc profile image
Andrewc in reply to farmerfester

thanks farmerfester was beginning to think I was the only one

Phantom2 profile image
Phantom2

Hi Andrew, welcome to the 10% Club!!! No, you are not alone. I am male (naturally), and was diagnosed in 2006 after 2 years of symptoms. I have the range of skin, neuro neurothopy in both legs, Intersantal Lung Disease as well as the normal fatigue, aches and pains all other Lupus sufferers have. I have only my wife and cats, as the kids have grown and gone.

I don't know where you live, but I run the Suffolk Lupus Group, website suffolklupusgroup.org and we meet around 6 times a year around Suffolk.

If you want some more info, or want to unload, I am also one of the national contacts listed in the back of News and Vies and my number is 01725 724386.

Hang in there fella, at least you have a good firm diagnosis! Take care buddy and talk when you feel like it.

I am NOT male but if you have a look at this post

healthunlocked.com/lupusuk/...

... on the lupus forum, it contains suggestions as to why the vast majority of lupus /auto immune sufferers may be female. Many suggestions that it may be related to thyroid/iodine imbalances. Females seem to have a greater need for iodine than males.

I am NOT medically trained. I just decided to read and seek information.

You should do your own reading to establish whether whatever I think maybe relevant is in fact true.

Hi there Andrew. Another chap here. I've one of those multiple, mixed up diagnoses that covers all sorts of autoimmune issues dating back some thirty years now. Welcome aboard and good luck. Stephen.

chrisj profile image
chrisj

My son knows of one man he plays online team games with who has Lupus, you're not alone Andrew..hugs