Does anyone get jaw pain bad enough that I have to hold my jaw just to talk?

[sleepee1]

[Adamventure]

I don't suffer with that symptom but Prednisolone is known to cause a thinning of the jaw bone ,if you have been on steroids for a while it could be that , then again if the pain is in the joints then that's very lupus ,hope you figure it out sleepee1

[Nanuuk]

I do! Mine is the temperomanbibular joint (TMJ) that gives me grief speaking, eating - locking open when yawning. I used to play in a brass band but noticed relief from symptoms when I had a break.

It was only identified as TMJ when I wassent to the dental hospital for a consultation - my teeth didnt fit together& it caused headaches!

Hope you figure yours out soon.xx

[sezzie]

Hi sleepee1,

Yes I too suffer with jaw pain but not as bad as you've described and mine seems to be worse when I'm flaring. My jaw also clicks a lot and I can't open it wide as it's stiff If that makes sense. Like nanauk I have a mismatched jaw so i put it down to that. I would advise discussing it with your dentist who may give you a referral to the dental hospital.

Good luck. Sarah X

[Tinksie]

My Rheumatologist has diagnosed me with Fibromyalgia which is quite common amongst Lupus patients apparently. Pain in the TMJ as mentioned above is common with Fibromyalgia. Mine comes and goes. Occasionally eating is difficult and yawning really painful but most of the time it is intermittent. If it has become continually very painful it's worth checking with your dentist as mentioned above if it is Fibromyalgia I've found Amitryptiline helps. Good luck.

[Natura]

Sleepee1...have occasional problems with my jaw...hurts bad when I try to sleep on my stomach. I love sleeping on my tummy, and can't anymore because of that. It feels sore and hurts. Sorry yours is so bad....feel better..

[jeevan05]

hi sleepe1, my lupus started in my jaw I don't have difficulty talking but yes it can affect ny eating and when I yawn sometimes I can feel a loud crack..

[sleepee1]

Thank you everyone for your answers I'm so glad I found this forum, you guys have more answers for me than I get from my doctors. There answers are usually that they aren't sure and that I am a unique patent because of all of the things I have going on. My diseases started about six years ago and they are still trying to sort things out. They have me up to ten diseases at this point and see a specialist for just about every organ im my body. Lets just say its been an interesting ride to say the least.