Over the last year or so I have had four funny episodes,three resulting me being admitted into hospital.It makes it seem like I'm having a stroke,my speech went slurred,face dropped,legs went weak.The next day it would be as if nothing happened,all scans e.t.c showed nothing.The first few times this happened it was just after having Rituximab and Cyclophosamide,my consultant and neuro specialist decided it was caused by a severe migraine brought on by the Cyclophosamide.I wasn't convinced neither was my GP.
Last month I spent two weeks in hospital very unwell because of a twisted cyst near my ovary and falopian tube.I was discharged on the Monday,on the Tuesday I didn't feel right so my partner made an appointment at the doctors to get checked out.Just as we arrived at the doctors I went to say something and the very familiar feeling of my tongue feeling funny started,within seconds my speech went slurred.This time it was worse than before and I also had a panic attack,because I hadn't had my chemo so though right this is it I'm going to have a massive stroke.My GP called an ambulance straight away and I spent the usual 24 hours in hospital,and as usual was fine again as if nothing had happened.
When I went home I was racking my brain to think what had I done the same every time it happened,then bingo Metoclopramide (anti-sickness tablets) they give me when I have my chemo,I had taken two that morning because I was still feeling sick.Went to see GP and told him,he looked up side effects and there it was everything that had happened to me.Every time this very scary thing that had doctors puzzled happened to me,it was a severe alergic reaction to the tablets.
The first time this happened a ale nurse in the McMillan unit told me these tablets can do funny things to some people and he thought it might be them.I mentioned this several times but was ways told no Definately wouldn't be them.I had been having these tablets every six months for 7 years with no problems.In future if my gut feeling tells me a doctor is wrong I will Definately be more firmer about putting my thoughts across,because my gut feeling was it wasn't what the doctors were telling me and I was right.
I had to go through this very scary thing more times than was necessary,my 9 year old son also witnessed this every time it happened.If doctors listened more it could have been prevented.
Sorry about this being such a long post xxx
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mum-two
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What a relief! The stroke symptoms are awful, you must been out of your mind with worry and all because side effects. Well done you for persevering, I hope they're giving you something else now!
gosh you have been brave and well done for figuring it out drs don't know everything.
I have been having severe back ache and bad sciatica all down to lupus it turns out after moaning for ever mri scan found a herniated disc. that's basic so sadly not suprised
Thank you for the replies and for the link baba,very interesting.
I'm just glad that my GP actually listens to his atients and took notice when others didn't.They seemed to think it was silly that a anti-sickness drug could cause this.Im due my chemo again this month and they were not going to give the Cyclophosamide because of this,this would have had a big effect on the way my lupus effects me.So I'm really glad I figured it out in time,I will be asking to have a anti-sickness tablet I took while in hospital with the cyst because I had no problems with it.
I owe the male nurse a massive massive thank you.
My son has recovered,luckily he is a very brave boy and this time because he had seen it several times before a knew mum was always ok in the end he didn't let it bother him.
It is the most scary thing I have ever experienced though and the memories will certainly stay with me.
Golly what a frightening story for you and your family, thank goodness you've found the cause and can do something about it! Thanks for sharing the Medicines Safety Website and I hope your health improves soon.X
Hi mum two..thank u for sharing this info. All of this is important to the community so that we can learn. Doctors don't know everything. I have learned to speak up lately....please take care, and hope u feel better...so sorry about your pains.i have two girls, 12 and 14...I understand how scary all that was for your son...be strong ...
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