Kidneys: Hi, has anyone else had problems with... - LUPUS UK

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Kidneys

madyorkie profile image
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Hi, has anyone else had problems with their kidneys, I have cyst in kidney which has changed to having calcium in it. I am awaiting results of CT Scan which should have been back today but surprise surprise are not. Would be interesting to hear from anyone who has same problem.

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madyorkie
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Vals-pal profile image
Vals-pal

Hi Madyorkie

I have kidney problems, in fact, it took my kidneys to fail to get a diagnosis of SLE. Docs are more on the ball now so hopefully you've been caught in time and your problems will be resolved without any further damage. I had a kidney transplant so now full of beans! There are so many different types of kidney disease and Cysts are a different problem to mine so maybe meds can keep you well.

Good luck

madyorkie profile image
madyorkie in reply to Vals-pal

Hi Vals-pal

Thanks for responding. I was diagnosed with just lupus of the skin but have been told I need to be assessed again as my lupus may be changing to other organs too. I'm not sure if my will have to see talk to my consultant when I see him in December. It has taken 2 stone of weight loss for things to get done with me. My doctor is also checking me for kidney cancer.

Vals-pal profile image
Vals-pal

I was checked for kidney cancer too, I think it may be just routine, as in part of the tests they do for anyone presenting with kidney trouble.

The weight loss could be partly due to worry so don't despair. I hope things go well for you at your next appointment.

Hi,

I am new on here and not yet diagnosed but have a strong feeling that diagnosis will be heading my way very shortly.

In 2011 I was diagnosed with Fibromyalgia because of joint and muscle pains, which seemed to develop the same time I found out I was gluten, lactose and pineapple intolerant. However, in September this year I had blood tests because of increasing fatigue and found out that my kidney function reading was down to 26 and I was referred to a nephrologist.

I had a biopsy two weeks ago and apparently it has given answers. My husband saw one of the vasculitis team Friday for his infusion and the dr is a lupus specialist too and told hubby that she has been asked to see me. Putting two and two together I am guessing a diagnosis of lupus is heading my way, possibly as soon as tomorrow.

How have other peoples kidney problems been treated meds wise?

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