Hi All,
You will know if you have read my previous posts that I am not yet diagnosed person. Low neutrophils, platelets, aches, pains, tendonitis, dry eyes, sore throats, feeling flu like much of the time, headaches, dizzy brain fog etc and positive anti-ro and anti-la. I wanted to describe my day so far and ask if this is how you confirmed lupies feel and if this is what I should be describing when I see the Rheumatologist in 2 weeks time.
"....wake several times in the night, wake at 05.55 to the first alarm and switch it off. Head fuzzy (hangover like but no booze involved), hands and feet swollen and stiff, neck ache, lie there until the next alarm at 06.10 and switch off. Think to myself that I would like to get up and take the dog for a run but my body refuses to move. Roll out of bed at 6.30. Toast and 3 coffees for breakfast. Can't be bothered to make my lunch for work. Shower. Feel dizzy whilst doing so and my arms and shoulders feel like I have been lifting heavy weights. Notice an itchy red rash on my neck. Could it be something I ate? Something I washed with? Notice a couple of new bruises....not sure how they got there. Get to work, computer screen makes my brain fog seem worse, legs feel like jelly, smile and on we go......"