Hi, I' like to know if anyone experiences there hands shaking when having a flare and for a while after?

[JGee]

I am 41 yrs old and have had Lupus for 10years. And been on steroids since then

[Hidden]

yep 12 years and 42 never been off the steroids. if its a mild flare no but the more serious ones shakey hands.

[Bebe76]

yes, I get this often, and when it starts I am usually feeling more fatigued or achy in general. Actually my whole arm feels shaky sometimes.

[NiksB]

Yep i have the shakes alot of the time and certainly the rougher you feel the worse it gets i think it adrenaline kicking in because your running on empty, this is often when i hit a wall ( one minute your ok and then you feel like your going to callapse )its quite scarey and ive even been known to burst in to tears for no reason which is just embarrsing.. but i know it wont get worse than that ive found a sugary drink/ bisciut gives a boost to get you home to put your feet up. Hope that helps good luck.

[MandaM]

Yep my hands sometimes shake when i'm running on empty! Usually a sit down with a cuppa works for me within minutes.

[JGee]

Thank you all for your comments and advice, makes me feel better knowing its not just me experiencing it. I was so scared. Lets all hang in there and have a "flare-free" year. Lord help us all. Amen

[JJKANE in reply to JGee]

Yes I get very shaky hands so much that I can not hold a mug of tea... it can be quite embarrassing but I have chosen to laugh at it ! it can get a bit messy though

[JGee in reply to JJKANE]

This is exactly what happens to me. EXACTLY! I used to have it for a short while and not so shaky, but this is going on for longer and more shaky, and I don't have a flare! It has always been scary for me, hence why i asked about it. Am glad it's Lupie! Thank you so much for sharing

[Karen34]

Hi there, Yes I too get very shaky hands, which do seem to get worse when I am particularly fatigued, or feeling worse than usual. I think the steroids can play a part in it too, like you I am on them constantly, and they tend to speed up my heart rate and (I think) affect the shaking. Take good care everyone x

[Nikkski22]

Hi Olajay, ii am currently on steroids (prednislone) and have also been experiencing shaky hands. it happens at the most inappropriate times and looks like im nervous or something lol ive also found that my hands sweat alot, i havnt had a problem with this in the past so i am assuming that is just the medication. x

[janetd]

I have been getting shaky hands for sometime and I have finished my Prednisolan, on Hydroxy and Anti-Depressants now.It's good to know I'm a normal lupie.

[JGee]

Janetd, it sure feels good to know ones a NORMAL Lupie,!!! I had been sooo worried about the shaking hands. Thank you all for taking out time to tell your experience.