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LUPUS UK

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ON BEDROOMS AND HABITS - HELP!

Hello my dear Forum Friends, Year Three of Pandemic Pandemonium! Well, I say ‘pa...

I apologize for my last post

Hi all, I’m crawling out of my hole some more today. I realize I may not have be...

Marbles in feet

Hi lovelies , hope you’re managing to keep warm 😊. Quick question .. anyone (I...
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Help need Filling out PIP REVIEW form

Can anyone recommend a service that helps you fill out your PIP Review form? The...

Does anyone else have problems with a cough more like a bark and during the night my breathing is terrible wheezing

Hi I’ve been in hospital about 4 times due my respiratory problems does lupus af...

Weaning off Prednisolone- nightmare!

As some may know from previous post I have fallen twice, bruising quite badly an...

What is a flare?

I have Lupus SLE and also APS. I always wonder what people actually mean that th...

No adrenal tumour - good news??

Hi gang, it’s been a while, I’ve been flaring and seeing lots of doctors. Last y...

4th covid vaccine

Hi i was diagnosed with lupus just over a year ago, im on hydroxychloroquine, iv...

Heart palpitations on hydroxychloroquine?

Hydroxychloroquine and heart palpitations? I've been suffering with palpitations...

Latest information in how people with lupus fare when they catch Covid-19?

I haven’t been here for a while so I am not up to date. Can anyone share the lat...

Lupus and free eye test

How come as people with SLE have to have yearly eye test, dont get it free we ha...

Lupus and teeth

Hi everyone I have Lupus SLE and I take steroid, Mychophenolate and hydroxychol...

Volunteers needed for an online focus group meeting on 18th January 2022 at 9.30 a.m.

LUPUS UK are collaborating with EPG Health in the creation of new patient educat...
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Alida_HorneAdministrator

I am new .....

Hi This is my 1st post. Was diagnosed with RA in 1994 when I was 28 with 2 small...

Please take a few minutes to complete an important survey by Lupus Europe

Lupus Europe are running their study for the third time and we have been asked b...
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Alida_HorneAdministrator

Flare with normal lab work?

Hi! I’ve been having all the flare symptoms por the past couple of weeks after ...

Hi, does the smelling burning go away or is this now a permanent thing?

Got diagnosed with lupus 5 years ago. Usual stuff, joint pain, rashes, pleurisy,...

Recommended Lupus Specialist in the UK?

Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors ...

Article

Mentions lupus and that there are so many types, how this makes it harder to tr...

Impact of covid pandemic on lupus (and other CTD) patients and clinicians - latest article

The Lupus UK (healthunlocked) forum members were pivotal in developing the quest...

Rituximab reaction?

Hi, I had my first infusion of Rituximab the 22/12, around New Year’s Eve I star...

Unbelievable

My youngest son is 33 and lives in an area where vaccinations were slow to get s...

LUPUS UK HARROGATE SUPPORT GROUP – NEW FOR 2022

Do you live in Harrogate or a surrounding area? Would you like to connect with ...

Introducing the new Chair of LUPUS UK, Elaine Holland

Hi everyone, After serving two terms as Chair of LUPUS UK, Kevin Weston (Kevin53...

How can I lower bp

I have completely cut Salt out out of my diet ! I try and exercise as m limited...

Latest gov letters for CEV people

Hi, I still haven't had my email/letter from government and PCR tests, I tried r...

Learning what a flare is!

So I’m new to this whole thing and have had bad anxiety for many years meaning I...

Nail issues

Does anyone have issues with their nails (fingers & toes) splitting, cracking, p...

need some advice from you lovely lot.

I tested positive for covid NYE. I've had the usual symptoms which haven't been ...
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