LUPUS UK | HealthUnlocked

Hi everyone, I’m a total newb to this. I have just been diagnosed with SLE and am in a bit of a whirl. It came as a shock. I hadn’t even heard of it before I...

What would you most like to tell rheumatologists? LUPUS UK are presenting at a conference for rheumatologists, and we want to make sure we include your...

This is Hugo chillin out while he waits to go out in the wind and rain this morning. Pulling on waterproofs and wellies and playing ball is last thing I feel...

Hi folks , it’s Mira,s 4th Birthday tomorrow, for anyone who is not familiar with Mira, she was born right at the beginning of Covid and certainly kept us...

Does anyone know about this.? Another surprise for me. I’ve been feeling well, getting out and about, decided to have a rest day today. This afternoon I...

I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems...

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experience with you all. Despite years of discussing my menstrual difficulties,...

hi folks just wanted to post a pic of my first ever walking stick - who would have thought at the age of 56 I would be needing one. Im so pleased with the...

hi folks it’s been a long while since I’ve last posted- I have been in and out of hospital 3 times in last 3 months with the most excruciating pain in my tummy...

Hello everyoneJust thought I'd pop in to show you this special cutie foal born at Whipsnade Zoo. He's a breed that is classed as extinct in the wild and...

Good morning im asking if these symptoms are familiar with anyone or if it’s nothing to do with UCTD/Lupus. I’ve been getting them on and off for a while...

Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in...

Hi lovely Lupies, an update on my post despairing of getting any support. Today the Rheumatology Nurse called me and was incredulous when I told her about my...

Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much needed aren't they as its gone so chilly?. I thought they looked really cute...

Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for...

We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to...

Hi everyone I wondered whether any members here have both rosacea and a malar flush on their faces? I have a constant red flush across my cheeks but when I'm...

Hi all, I had to go to the rapid access chest clinic and they want to do a contrast CT scan of my heart, to be on the safe side. I'm really worried about...

Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and...

Hi looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sjorgens syndrome but really had a bad reaction. Spoke to the pharmacist and she...

Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in...

Hello,Please can I have some advice re sunhats. I am going to Crete in July. I have hats I wear, but I was wondering if anyone knows of a factor 50 hat, that...

Hi all! I recently signed onto the Visible app and wearable, which allows you to track your heart rate, HRV, log symptom severity and get signposts as to...

Hi Everyone. It's taken me a long time to write this post, but is there any one particular site/publication etc where I can find out about contra indications...

Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author...

so just found out from having a private lower back mri that I have several degenerative discs, bulging discs and a tear and compression of 2 nerves that I was...

Hi, I've just joined the group following a diagnosis of cutaneous lupus. My skin is affected on my arms, shoulders, back and chest and a few smaller spots on...

hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital....

Morning everyone. I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I...

Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredness, rash on cheeks a lot of ulcers in mouth. Unsure if lupus was sent to...