LUPUS UK | HealthUnlocked

So I’ve been dealing with being sick since last January with fatigue, joint, hand, and feet swelling, brain fog, sensations in my legs and arms and weakness,...

Hello everyoneI hope your all as well as possible for the festive season and you like all these woodland characters!. I just wanted to say a big THANK YOU for...

Wishing everyone a restful Christmas.....Feet up folks let someone else do the dishes 😊 from SML & Hugo xx

Hi, I am reaching out to see if anyone can give suggestions on some odd symptoms I have had over the last two years. I have been doing the rounds with...

so this may be a weird one . Everything I wear almost.. sports bras, pants , stretchy yoga pants, socks, bracelets… they all leave impressions on my skin....

Hello EveryoneJust had to show you this little 12 week old cutie baby orangutan Sibu Junior. He's being hand reared at Monkey World in Dorset as his mum...

Hello. I have discoid lupus and take 400mgs of hydroxychloroquine per day for the last 6 years. I have seen the hospital opthalmologist twice, once about 5...

My boys wanted to say hello and spread abit of Christmas cheer. Anyhooo...... my main news is I've finally got a date for the reconstruction surgery on my...

hi my name is Kerry, I’m a 42 year old mental health nurse from Burnley Lancashire. Last 4 years have struggled with a lot of symptoms of Lupus and autoimmune...

I have been taking hydroxychloroquine 400mg for 16 years for Lupus management. This is currently my only treatment, though I have previously had several years...

Hi everyone I’ve just received my dreaded pip review form. My question is does everyone here send supporting evidence with their form. I currently receive...

Hi, I have SLE and for over 10 years have a cough that just won’t go away. Doctors have tried various treatments without much luck. I wondered if anyone else...

here’s a close up of the itchy eyelid and you may see the discolouring almost like an old bruise but it’s light purple or dark lilac in colour. It’s on both...

I have Adult onset Stills disease which manifests as rheumatoid arthritis. I’m not on any prescription meds for this. Some symptoms are simulate to lupus and...

Hi , ive been recently diagnosed with Lupus and wonder if there is a support group or a contact in or near Gloucestershire where I live?

Saw this and just had to have it x

Hi everyone, Does anyone have any tips for managing joint swelling and pain? I have been using tiger balm, heated gloves (I also have raynauds) and taking...

I’m on fortnightly blood tests and last couple months my veins seem to have given up. The nurses just can’t get blood to come out, I sit there with the needle...

Hi all, so I have lupus on methotrexate and hydroxychloroquine, I am had very stiff sore feet in the morning for ages but its ok after about 10 minutes or so,...

Hi lovely Lupies, Just a quick question please…when you are on the DMards do you get Covid testing kits? I have a carer for 9 hours a week who will not have...

Hi Everyone, I have been on HCQS 300 for 2.5 years now but that has not stopped flare ups including red rashes on my face , mouth ulcers on the roof of mouth...

Hi lovely Lupies, I hope that you are as well as you can be and looking forward to the Christmas festivities? Just a quick post to say that today I had my...

so my GP printed off the correspondence between him and the rheumatologist which I picked up from the surgery on friday only to find it was correspondence from...

anyone experienced joint pains without visible swelling ? My hands feel stiff and puffy as do my feet sometimes , but no visible signs of swelling. Is it just...

Hi, I started HRT in February and have really felt the benefit of being on this. However I was then diagnosed with lupus in August. A few people have...

Hi Lupies, recently been moved from methotrexate to mycophenalate and my eyes have become really sore and dry. Is this is a common side effect that anyone has...

Hi are there are national centres of excellence for the treatment of SLE, or does anyone know of a good private dr offering support in this area. Is...

hi husband has severe symptoms for 4 months now (fatigue, shortness of breath, rash, joint pain, nausea, weight loss and more) just diagnosed with connective...

Hi All, Hope this finds you all well. Wanted to ask which vitamins you take to keep you topped up with energy, and that doesn’t interfere with stimulating...

Being investigated currently . But does anyone else get rashes like this ? I can only post one picture, unfortunately. This is the most current. Although...