LUPUS UK | HealthUnlocked

Spoke to gp today, she refuses to send me to rheumatology as I don't have a rash!! Says it's requirement. I told her not everyone gets a rash she said 80% do I...

Has anyone with raynards had this test? And so did it lead to a diagnoses? I saw a consultant rheumatologist at bath yesterday and I have to go back in about 3...

I have had Lupus SLE since 2002 and have now been diagnosed with Haemachromatosis in November 2024.I am to have venesection to reduce my iron overload. I would...

Now I start on the long road to recovery. Xx

Hi everyone. This may be a long post so please bear with me. I've had lupus for 35 years and have been on prednisolone on/off for all that time. Main symptoms...

Hello EveryoneJust thought i'd pop up with these two lovely 'cuties'. The lamb is a week old, Reminding us that Spring is on its way, despite this miserable...

Here is Hugo sussing out the rare occurrence of more than 6 flakes of snow in coastal Cumbria. Thank you to everyone for your messages of support , recovery...

Just had letter from bath appointment, she said longstanding symptoms potentially consistent with uctd but low index of clinical suspicion. The longstanding...

hi husband very recently diagnosed with mixed connective tissue disease and informed by Rheumatologist has some antibodies which show a hidden cancer-but no...

Dear Cath, (Belated!) Happy New Year! Thank you so much for completing our recent survey on medical care, symptoms and hormones. We would greatly appreciate...

Hi guysI don't post often but I do check in for advice all the time. Here is my latest, hope I don't waffle too much. I have had lupus, fibromyalgia,...

Hello all! I've just had a morning cortisol test on 4.5mg prednisolone (down from 5mg recently which I've been on for about six years now). The result is...

thought I would start the day with something funny hence the pic above, it so made me laugh and we could all do with that. Sorry I haven’t been on the forum...

As patients in some areas of UK are not been seen regularly in NHS clinics any more, and routine blood and urine tests being left to the patient and the GP to...

good morning, I wanted to ask if anyone has any tips on how to navigate the NHS rheumatology appointments. I was tested by GP for antibodies, inflammation etc...

I was diagnosed with incurable cancer over 18 months ago. I got the most terrible rash which eventually was diagnosed as subacute cutaneous lupus. It was...

I was diagnosed with SLE and APS around 25 years ago ; I take Warfarin to control my blood INR and have little or no trouble with this. The inflammation and...

dear all lovely members I’ve posted previously about my ongoing headache (which i only get between 3am and waking ). You may remember I had a sleep study done...

Hi I'm never sure which group to post these in because I have overlap autoimmune so if there is a group more suitable to this lost please let me know. I've...

some may remember me writing that I fell out of my stair lift from the top of a high stairs at my home. I fractured my right temporal bone, had a brain bleed,...

Happy new year! I went to a car insurance comparison site and got to a part asking about illness/disability. I looked on the DVLA site and didn't see lupus...

Hi all, hope you've had a lovely christmas and new year 😊💕 Mine unfortunately was cut short by a drunk driver crashing into my new car that has now put me...

Hi I wasHi I'm new here looking for advice please 🙏 Was diagnosed with fibromyalgia in October by neurologist. However I've had joint pains evry day and...

I know hair loss is the least of problem when it comes to lupus symptoms but I find it depressing a bit that my hair loss is beginning to look more obvious now...

For the last 12-13 years my physical health has been declining. First started around 15/16 years old, I started having heart palpitations, frequent infections,...

Hi All So I’m sure alot of you have suffered hair loss through your journey like me. Mine has been on and off for about 20 years now, to differing degrees but...

Good morning and Happy New Year from across the pond, I have a question in regards to Hydroxychloroquine. Lately, my bones have been aching. It hurts to...

I have tested positive for ANA and ds-DNA several times but always negative for ENA through NHS. I paid for a private blood test that gave me a titre 1:320 and...

Hi all - hope this is a good or better day for you all from yesterday. Can anyone give me an idea what liver levels are regarded as normal. We were told...

My "allergies" have got decidedly worse over the years and particularly the last 2 years. i get extremely swollen red eyelids and my undereyes puff out and...