@LUPUS-SUPPORT

[lupus-support1]

What topics or questions would you like to discuss or learn about?

[MandieR]

anger issues

DLA and incapacity problems

mis diagnosis

[lupus-support1 Administrator]

Hi Mandie,

Welcome!

Thank you for your reply.

If you would like to talk more about this, may I suggest you register (free) at lupus-support.org/LuPUSMB

As I validate all registration personally (to ensure confidentiality) this can take up to 24 hours, so please be patient as I will not be available until tomorrow.

You will find people who have also had to combat DLA and incapacity problems and they may be able to help you.

In terms of your anger, you can talk to others and/or you can also talk to me privately through the Personal Message system.

Any problems, let me know.

With good wishes,

Ros

[kwerm00]

Lupus and adult ADD

[lupus-support1 Administrator]

Do you think there is a link between SLE and ADD? Would you like to say more?

[kwerm00 in reply to lupus-support1]

I was diagnosed with ADD in about 2008 and have since benefited from stimulant medications. I was diagnosed with lupus in Oct 2014 and began plaequi (sp) . I took a break from my ADD medication until the lupus med's met their full effect. My concentration, memory, and mental functioning was terrible while I was not taking the ADD med's. During a terrible flare up I decided to begin my ADD med again and it was a significant improvement, and made the flare much easier to cope with. I have mentioned how much it helps my cognition a few times to different people including one of my Doc's. So far I have not had anyone response to this as if it could truly be helpful for lupus fog. I have researched much on lupus fog, medications used for lupus symptoms, etc. and I have not found any information about possibly using add med's for periods of lupus fog. Just wondering if it could help lupus patients who suffer from this difficult symptom, even if they do not have an ADD diagnosis.

[lupus-support1 Administrator]

I am not a medical doctor and therefore cannot make any comments other than my own view. Taking any kind of stimulant has to be taken by a physician according to the symptoms and diagnosis.

Stimulants should not be given ad hoc just for "brain fog" since this cognitive problem is the result of lupus.

Stimulants can be harmful.

This article may be helpful: ncbi.nlm.nih.gov/pmc/articl...

There are side-effects and can be dangerous for a range of patients: my.clevelandclinic.org/heal... Hyperactivity_Disorder_Stimulant_Therapy

You suffer from two unconnected conditions which I can appreciate is very difficult for you.

With good wishes,

Ros