The study is in the form of a 30-minute online survey followed by a 10-minute interview. As a thank-you for providing your thoughts, opinions and experiences on your condition, you will receive £40.
To find out more, join (free) the LuPUS Messager Board: lupus-support.org/LuPUSMB
i suppose i am lucky compared to some. i was diagnosed with lupus of the skin 3mths ago.
i find it very hard to keep out of the sun and even had to buy a sun hat which i am not a hat person. i have even started buying uv protection clothing which is quite expensive, i am going to AUSTIN USA in September and is sightly worried about how to cope with the sun there, my rash is on my arms legs and face. i would love to hear from anyone who ihas this kind of Lupus and how they are managing with this.
Madhead
