Lorlatinib: Is there anyone out there... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Lorlatinib

bellerarny profile image
3 Replies

Is there anyone out there who has any idea how to get a hold of Lorlatinib. my husband has a stage 4 lung cancer with a Ros 1 mutation driver. he is a nonresponder to crizatinib. Lorlatinib seems most likely to help but study is closed and next one far away from us. compassionate care not available.

any ideas?

anny

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bellerarny profile image
bellerarny
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3 Replies
RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Dear Bellerany,

I note you stated that compassionate care is not available.Which area do you live in? We will do our best to direct you to some support services which may be available in your area.I can send you a private message by email  if you would prefer.

Kind regards,

bellerarny profile image
bellerarny in reply to RoyCastleHelpline

hi would very much appreciate a private email if you can and have any information for me.

thanks so much!

arny

richdlr profile image
richdlr

Hi Anny,

Did you get an answer to this? I'm in the UK and wondering how I can get hold if it too.

Richard

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