IPF any new meds?: Hi, now allergic... - Lung Cancer Support

Lung Cancer Support

4,001 members2,169 posts

IPF any new meds?

Wolverton profile image
4 Replies

Hi,

now allergic to perfeniden and nintenabs anything else out there to assist obviously getting worse

Written by
Wolverton profile image
Wolverton
To view profiles and participate in discussions please or .
4 Replies
Denzie profile image
DenzieModeratorVolunteer

So sorry no one has responded. Most of us here have lung cancer which is treated very differently from idiopathic pulmonary fibrosis. Are you being seen at a teaching hospital? Have you talked to your doctor about clinical trials?

Wolverton profile image
Wolverton in reply to Denzie

Hi, many thanks have completed trials but latest from specialist was 'good luck' so just seeing if there is anything else out there?

Denzie profile image
DenzieModeratorVolunteer in reply to Wolverton

Are you being seen by a pulmonologist at at a teaching hospital?

Wolverton profile image
Wolverton in reply to Denzie

Hi, am registered t Leicester University respiratory medicine services and although not receiving any medication have telephone reviews, have one next month when I will enquire concerning pulmonolgy, many thanks

You may also like...

Portacath...any information please?

from lung cancer surgery. We’re devastated & he’s now starting chemo & Keytruda. The chemo unit...

New Protocol - Heads Up

procedure. It will eventually spread out to others. So, be aware if you get a call requesting you...

multiple new nodules on 1st CT scan after surgery

so soon after surgery. I am already supposed to get photo dynamic therapy for cancer in situ and...

New here... Dad w/ IIb, 7 cm tumor - ISO tips prior to tmrt & surgery