Is there anyway i can help its importa... - Lung Cancer Support

Lung Cancer Support

4,003 members2,170 posts

Is there anyway i can help its important to me?

SusieJo1948 profile image
6 Replies

want to be advocate from home and talk to patiences. susiejo1948

Written by
SusieJo1948 profile image
SusieJo1948
To view profiles and participate in discussions please or .
6 Replies
Denzie profile image
DenzieModeratorVolunteer

SusieJo,

You’re so sweet to want to help like this. There’s an organization that doesn’t have Patient boards like this but they do have a Phone Buddy Program. You could be matched with a person who was just diagnosed and needs guidance. They’re called lungcanceralliance.org.

Also from home, you can send letters or emails to your federal and state representatives encouraging them to increase funding for research or programs for survivors.

Marc_M profile image
Marc_M

Susiejo, I'm over 6 years out from my dx and am cancer free but dealing with long term effects of treatment. I too wanted to help and have been volunteering with Cancer Hope Network. They match new patients with volunteers with similar cancers. It has been a great experience for me. Google them.

tingle55 profile image
tingle55

SusieJo1948-Thanks for wanting to help and be an advocate. I start my chemo treatments on Feb 5th with 4 cycles of cisplatin & gemcitabine. If I would lose my hair, when would it happen? The first week or later? Just want to be ahead of the game.

Thank you

JRuthI1946 profile image
JRuthI1946 in reply to tingle55

After same chemo and radiation, I did not loose my hair. Some thinning

But nothing to worry about

SusieJo1948 profile image
SusieJo1948

tingle55 the first week not so much,thanmore the second week. Its different with every one good luck susiejo1948

tingle55 profile image
tingle55

Susiejo1948 thank you, that helps.