Posts - Leukaemia CARE | HealthUnlocked

Leukaemia CARE

1,278 members • 802 posts

3. CLL posts

Sort posts by:

CLL Patients Needed

Hi, I am a patient engagement manager for Patient Power. We engage cancer patients to share their stories to advocate, educate and create better outcomes for...

Hi, I am a patient engagement manager for Patient Power. We engage cancer pati...

•1 year ago

Leukaemia Care and Lymphoma Action - CLL treatment update webinars – 26th April and 5th May 2021

It has been a good start to the year with several new CLL treatments being approved or approaching approval in UK countries. Leukaemia Care and Lymphoma Action...

It has been a good start to the year with several new CLL treatments being appro...

Administrator•3 years ago

Isolate or distance?

Hi, I'm a CLL patient – diagnosed 6 years ago and on watch and wait ever since. I'm 52 and have two kids at primary school. I'm holed up in the spare room (I...

Hi, I'm a CLL patient – diagnosed 6 years ago and on watch and wait ever since. ...

•4 years ago

Want to take advantage of all our features? Just log in!

or

Elective hip replacement for osteoarthritis in severe CLL - any advice?

I'm new here. Does anyone have experience of hip replacement surgery for osteoarthritis in severe CLL. Is it safe to have the hip replacement surgery and then...

I'm new here. Does anyone have experience of hip replacement surgery for osteoar...

•5 years ago

Food supplements .

Any known best practise and recommendations for Food supplements that work for boosting immune system ? For me Turmeric with black pepper works so does Ginger...

Any known best practise and recommendations for Food supplements that work for b...

•6 years ago

Permanent Cold Like Symptoms .

I was diagnosed with CLL 4 years ago . I am now 2 years post Chemotherapy . I have a secondary Lymphoma ,which my Consultant is not duly concerned about at...

I was diagnosed with CLL 4 years ago . I am now 2 years post Chemotherapy . I ha...

•6 years ago

CLL: FLAIR Trial site list and update to design

In response to an email, I received the following reply from the organisers of FLAIR with permission to share this in the online patient forums. I will include...

In response to an email, I received the following reply from the organisers of F...

•6 years ago

Introduction

Hi my name is Heather and I have just joined the group I have cll was diagnosed in 2007 and still on watch and wait. Would be nice to catch up with someone...

Hi my name is Heather and I have just joined the group I have cll was diagnosed...

•6 years ago

Jillychoo

I have CLL and am on watch and wait. I have been getting headaches at the back of my head and to one side. I’m wondering if this is a symptom. Also how bad to...

I have CLL and am on watch and wait. I have been getting headaches at the back o...

•6 years ago

CLL

Hi I was diagnosed with CLL 2 years ago and am on watch and wait. I have also suffered with chronic fatigue syndrome (ME) for a number of years and wondered if...

Hi I was diagnosed with CLL 2 years ago and am on watch and wait. I have also su...

•6 years ago

Could you become a CLL buddy?

In 2018, we’re launching a new, 12-month pilot scheme based in the East Midlands providing buddy support to newly-diagnosed chronic lymphocytic leukaemia (CLL)...

In 2018, we’re launching a new, 12-month pilot scheme based in the East Midlands...

NicoleLeukaemiaCare

Administrator•6 years ago

Be the first to reply

New booklets

Hello all, Just popping in to tell you that a further two booklets have become available on our website: CLL - this is a review booklet, which means it has...

Hello all, Just popping in to tell you that a further two booklets have become a...

NicoleLeukaemiaCare

Administrator•6 years ago

Info on CLL

After 10yrs my white blood count has increased from 62.7 to 93.4, and the lymphocytes from 52.5 to 80.5, this is the biggest increase I have experienced. Does...

After 10yrs my white blood count has increased from 62.7 to 93.4, and the lympho...

•7 years ago

ATTENTION CLL + SLL PATIENTS AND CAREGIVERS:

Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the...

Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submi...

•7 years ago

Be the first to reply

All things CLL

A general discussion about Chronic Lymphocytic Leukaemia

A general discussion about Chronic Lymphocytic Leukaemia

NicoleLeukaemiaCare

Administrator•7 years ago

CLL

I started looking for my cancer in 2012. It was discovered in 2013 after colonoscopy. Chronic Lymphocytic Leukemia. I try to remain optimistic. It is getting...

I started looking for my cancer in 2012. It was discovered in 2013 after colonos...

•7 years ago

Ccl confusion

I have been on watch and wait since 2011 and my new consultant has not decided about starting chemo even though I have no stage B symptoms and numbers are...

I have been on watch and wait since 2011 and my new consultant has not decided a...

•7 years ago

Hello

Hi, I am nearly 72 and was diagnosed last year as having got "T" Cell CLL, this was quite a shock to the system as you may imagine, I have been in remission...

Hi, I am nearly 72 and was diagnosed last year as having got "T" Cell CLL, this ...

•7 years ago

Write a post or ask a question