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Leukaemia CARE

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2. AML posts

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AML 7 months post transplant chimerism

I am 7 months post transplant with no MRD and blood work normal. 97% donor cells in BM. Platelets always slow to pick up, hovering around mid 60's but cause no...

I am 7 months post transplant with no MRD and blood work normal. 97% donor cells...

•11 months ago

Transplant at Birmingham

Hi has anybody else had transplant at Birmingham QE hospital? I have one scheduled soon and very frightened. Diagnosed with AML in Nov 2021. Completed 4 cycles...

Hi has anybody else had transplant at Birmingham QE hospital? I have one schedul...

•1 year ago

AML and Propranolol

As many may know I have AML..neutrophils and red cells fairly normal, except for platelets...below average. Now, talking to our wonderful haematologist at my...

As many may know I have AML..neutrophils and red cells fairly normal, except fo...

•4 years ago

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MDS and AML

Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis and having over a dozen blood tests abd no referrals...

Despite feeling lethargic and tired for over two years and going to the doctors ...

•4 years ago

Dr Manos Nikolousis video series filmed at the American Society of Haematology 2018 - Progress and reasons to be optimistic for AML patients

In this next clip Dr Manos Nikolousis discusses treating AML patients in a more effective way, studying genetic profiles to match patients to more effective...

In this next clip Dr Manos Nikolousis discusses treating AML patients in a more ...

Administrator•5 years ago

My experience of AML.

Hi I am new here. Last year my wife and I were on a family holiday in the UK - Torbay and when I contacted our local surgery about something else, it was...

Hi I am new here. Last year my wife and I were on a family holiday in the UK -...

•5 years ago

Getting there,!!

Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!

Almost 9 months since my stem cell transplant tho still breathless getting stron...

•6 years ago

New booklet available: Relapse and AML

Hi all, Hope you're keeping well in this cold weather. Please keep yourselves and your loved ones wrapped up. Just a quick announcement about our latest...

Hi all, Hope you're keeping well in this cold weather. Please keep yourselves an...

NicoleLeukaemiaCare

Administrator•6 years ago

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AML my mum and the future

Hi it's my first post about this subject so here goes. My mum was diagnosed with AML in feb, she's 73 and was admitted immediately and had a cycle on intensive...

Hi it's my first post about this subject so here goes. My mum was diagnosed with...

•7 years ago

All things AML

A general discussion thread about Acute Myeloid Leukaemia

A general discussion thread about Acute Myeloid Leukaemia

NicoleLeukaemiaCare

Administrator•7 years ago

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Jona AML

My son Jonathan 33 yrs old has AML. Is now relapsed after Stem Cell transplant and also has leukemia tumours in his skin and left eye. does any know of...

My son Jonathan 33 yrs old has AML. Is now relapsed after Stem Cell transplant a...

•7 years ago

AML shock.

Hi my mum has just been diagnosed with acute myloid leukemia. This has been quite a shock not only to mum but all our family. She had been suffering for some...

Hi my mum has just been diagnosed with acute myloid leukemia. This has been quit...

•7 years ago

Pain relief

MY mum had aml and is suffering with painful hands and shoulders sm trying to find some pain releif for her she is not on any medication now onlyba monthly...

MY mum had aml and is suffering with painful hands and shoulders sm trying to fi...

•7 years ago

Coping with being ill for the first time after treatment has finished when your in remission.

This may sound silly, but how do you switch off from that panic mode when your feeling unwell. I was diagnosed with APML in April and responded well to...

This may sound silly, but how do you switch off from that panic mode when your f...

•7 years ago

Mom diagnosed with AML - leukaemia, problems with swelled feet and hands

Hello all.. My mom (55 years old) just got diagnosed with leukaemia on Monday and started her chemo on Wednesday. Her feet got swelled first, now hands are...

Hello all.. My mom (55 years old) just got diagnosed with leukaemia on Monday an...

•7 years ago

Acute myeloid leukaemia

Hi my name is Donna in December 2013 I went into hospital with what I thought then was tonsillitis only to be told the next morning i had cancer and they had...

Hi my name is Donna in December 2013 I went into hospital with what I thought th...

•7 years ago

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