Posts - Leukaemia CARE | HealthUnlocked

Leukaemia CARE

1,277 members • 802 posts

All posts for January 2020

On imbruvica for two months

Just went to the oncologist today blood work is good white blood cells are down to 45,000 bloodwork looks good this pill is A miracle besides the common side...

Just went to the oncologist today blood work is good white blood cells are down ...

•4 years ago

AML video update of advances in AML treatment by Dr Manos Nikolousis

In December our Patient Advocacy team attended the American Society of Hematology (ASH) 2019 meeting in Florida, along with our trustee Dr Manos Nikolousis. In...

In December our Patient Advocacy team attended the American Society of Hematolog...

Administrator•4 years ago

Childhood ALL video update by Dr Sara Ghorashian from the 2019 American Society of Hematology (ASH)

We spoke to a number of blood cancer experts at the 2019 meeting of the American Society of Hematology (ASH). In this video interview Dr Sara Ghorashian...

We spoke to a number of blood cancer experts at the 2019 meeting of the American...

Administrator•4 years ago

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Video Interview: Acute lymphoblastic leukaemia (ALL) research updates from ASH 2019. How genetic information aids diagnosis and treatment

In December 2019, our Patient Advocacy team attended the annual American Society of Hematology (ASH) conference in Florida, where the latest research in...

In December 2019, our Patient Advocacy team attended the annual American Society...

Administrator•4 years ago

Nervous journey

On way to see Consultant to get results for my 25 year old son who has ALL. Hoping MRD will be low enough this time ready for transplant. Nervous morning...

On way to see Consultant to get results for my 25 year old son who has ALL. Hop...

•4 years ago

Imbruvica

Update bloodwork I have to say besides the side effects with these target therapy pills it’s really shown a miracle my white blood count was 230,000 then it...

Update bloodwork I have to say besides the side effects with these target therap...

•4 years ago

Thoughts &ideas on fatigue

I have ET. Diagnosed 12 months ago. Platelets around 600. On Hydroxyurea (HU). Male 67 years old. Fatigue has been a real issue. I am a high school math...

I have ET. Diagnosed 12 months ago. Platelets around 600. On Hydroxyurea (HU). M...

•4 years ago

Acute lymphoblastic leukaemia

Hi is the forum still active for Acute lymphoblastic leukaemia on this site. I can only see CLL posts. Thanks Hayley

Hi is the forum still active for Acute lymphoblastic leukaemia on this site. I ...

•4 years ago

Zap 70+ cd5 & cd23

Anyone similar? Diagnosed in late 18 but WBC spiked in 2017 to 17K. Now 57.5K with Lymphocytes at 83% Neutrophils at 14%. Currently on W&W........fatigue is...

Anyone similar? Diagnosed in late 18 but WBC spiked in 2017 to 17K. Now 57.5K wi...

•4 years ago

Experiences with Ibrutinib?

Hi i just started Ibutrinib treatment this week for CLL/SLL. I have a mutant P53 gene. Also two inguinal lymphomas. So far so good. What are other people’s...

Hi i just started Ibutrinib treatment this week for CLL/SLL. I have a mutant P53...

•4 years ago

Dear all !

Dear all ! I have recently diagnosed wit abdominal follicular lymphoma grade 1 stage 2 . Doctor for the moment recomanded ww . My anxiety is very high! How...

Dear all ! I have recently diagnosed wit abdominal follicular lymphoma grade 1 ...

•4 years ago

NHL, STAGE 4, FOLLICULAR, B CELL

Hello everyone. Appreciate all your knowledge and well wishes. I have my airline ticket and hotel for Tijuana. Leaving on Jan. 7-14 to check out alternative...

Hello everyone. Appreciate all your knowledge and well wishes. I have my airline...

•4 years ago

On the imbruvica for two weeks

Have to get my blood check every two weeks I just went to the oncologist today and my white blood cells were 235’000 and it went down 115,000 Hemoglobin went...

Have to get my blood check every two weeks I just went to the oncologist today a...

•4 years ago