AML 7 months post transplant chimerism

[Platelets2022]

I am 7 months post transplant with no MRD and blood work normal. 97% donor cells in BM. Platelets always slow to pick up, hovering around mid 60's but cause no issues. Overall health great full time back at work, driving etc. However at last check up advised need to bring the dreaded bone marrow biopsy forward to check T cells/chimerism as they have dropped from 90 to 30. May have to have extra top up T cells. This has started my head spinning again. Anybody else experienced similar?

[2003UK Champion]

Hi I cannot help you with your medical question but I do know the head spinning all too well. I think ever since the shock of my diagnosis my emotions and thoughts are on this high alert rollercoaster and it just takes a medical person to say one word and they go into overdrive. I also get anxious before all medical tests and appointments to and if my results are all stable apart from one, it is only that one that I focus on. My head spins whilst I am waiting and don't we do some waiting, it seems never ending. Really look after and be kind to yourself and if you would like to talk to someone the Leukaemia Care support line is there for you

[Platelets2022 in reply to 2003UK]

Thank you 2003UK for taking the time to read my question. I am so glad you have high lighted exactly how I feel too before appointments and like you point out the focus and anxiety is always on that lower reading, or repeat tests. It certainly is a rollercoaster isn't it! I think people forget if you look well and are doing normal things then they think you are fine. On the inside though some days can be emotionally draining. Have a lovely weekend.

[2003UK Champion in reply to Platelets2022]

Oh, my pet hate is someone saying 'oh, you do look well' went I am feeling so, so rough inside. Yes, I can feel drained emotionally, physically or practically. Beautiful weather here today and since diagnosis I have realised that the best things in life are free.