ALAN - The Acute Leukaemia Advocates Network is an international group of patient advocates and charities supporting patients in their own countries who live with an acute leukaemia diagnosis. The network's steering committee is chaired by our own Advocacy Director at Leukaemia Care
There is an urgent need globally for a detailed survey of patients to understand their experiences, key issues, and unmet needs throughout their journey with acute leukaemia.
Please share your experience in the global survey here: acuteleuk.org/project/globa...
This questionnaire is about your Quality of Life whilst living with acute leukaemia. We would like to ask you about your experiences of living with the disease – throughout your treatment journey and beyond.
The survey results will be used to help understand the key issues, experiences, and unmet needs for patients and caregivers throughout the journey with acute leukaemia.
Taking part in this survey is voluntary.
Published reports will not contain any personal details.
Who should complete the questionnaire?
The questions should be answered by the person who has been diagnosed with acute leukaemia. If help is given to complete the questionnaire, the answers should be given from the point of view of the person diagnosed with acute leukaemia – not the point of view of the person who is helping.
