Leukaemia CARE | HealthUnlocked

Leukaemia CARE

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Any news

Hi all has anyone heard from Drunkjam_Uk. No update for a while. Hoping she is...

CLL travel I insurance

My husband was diagnosed with CLL last July 2023. He desperately needs a holiday...
Rockon2023 profile image

We're closing this forum

After thorough consideration and evaluation, we want to inform you that Leukaemi...
NicoleLeukaemiaCare profile image
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Christmas Eve with HCL

Hi guys bloods going in right direction feeling positive but have lots of aches ...
Canicatti01 profile image

AML hidac

I am a current AML patient having chemo treatment. Soon after Christmas, it will...
Littleolive profile image

Our friend Drunkjam

Has anyone heard from our lovely friend DrunkJam of late. Bit worried xx
Cyprusfan profile image

AML and stem cell 12 months on

Anybody struggling with adapting to the new person they have become after all th...
Platelets2022 profile image

Hairy cell leukemia

Anyone out there?
Canicatti01 profile image

Anyone taken Azacitidine sub Q?how many cc?where? any reactions?

anyone taken azacitine sub Q how many CC where? reactions? better to inject ...
redlicorice profile image

Abnormal smear test post transplant

Anybody had an abnormal smear test post transplant?
Platelets2022 profile image

Childhood vaccines

Hi. Had my childhood vaccines just over a week ago. No issues apart from sore ar...
Platelets2022 profile image

Taste and smell issues 11 months post transplant

Interested to hear if anybody else has experienced this?
Platelets2022 profile image

Post stem cell transplant vaccinations

Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines...

CLL /mbl

Hi newbie here and finding my way! Been a diagnosis with mbl in last few years b...
Vwcaliocean profile image

Hello

Hi,Very new to this. Diagnosed with LCC this month. So here to find information...
MAC28 profile image

AML 7 months post transplant chimerism

I am 7 months post transplant with no MRD and blood work normal. 97% donor cells...
Platelets2022 profile image

If you have/have had an acute leukaemia, please help us by completing this survey

We’re working with ALAN (Acute Leukaemia Advocates Network) and OHE (Office of H...
LCAlex profile image
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introducing myself...

hello all, i'm new to this community and happy to be a part. i was diagnosed w...
jmcasbar profile image

Prefibrotic Myelofibrosis and I hate Hydroxyurea (HU)

Recently diagnosed, first with ET. And put on 500mg hydroxyurea daily with plate...
Apple238 profile image

CLL Patients Needed

Hi, I am a patient engagement manager for Patient Power. We engage cancer pati...
AlexCam profile image

Wellbeing Workshop

Do you struggle to cope with anxiety, stress, or fatigue? Do you have trouble sl...
LCAlex profile image
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March 2023 Treatment Update Webinars

Our treatment update webinars are fast approaching! Webinar dates... THI...
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Administrator

Rituximab

Hi all. I am 100+ days post transplant for AML. Doing well, driving, walking, wo...

Chemo brain

Hi does anybody else struggle with what is called chemo brain?

Acalabrutinib and headaches

I started taking acalabrutinib in December last year. All went well for the firs...
tpbholm profile image

Anxiety/panic attacks

Hi, but if background. Husband has AML with FLT 3 and is going for transplant in...

Wait and watch approach

I had CLL for 3 years now, I see my oncologist every 3 months, I have many enla...

Clinical trials for AML

Hi. Since I had a abmt in July I have been visiting the hospital 3 times a week....

Bone marrow bi opsy

Having bone marrow bi opsy after transplant at Birmingham. Have prebiously had u...

Are you able to help?

Hi all, As a leukaemia patient, have you been impacted by the UK’s cost of livi...
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