Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,091 members • 2,077 posts

All posts for May 2021

I'M NOT A BUBBLE WRAP BOY

This is a lovely storybook put together by our friends @NovartisUK - I'm not a bubble-wrap boy - storybook to help children understand ITP You can download a...

This is a lovely storybook put together by our friends @NovartisUK - I'm not a b...

•3 years ago

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Jak2

Symptoms of jak2

Symptoms of jak2

•3 years ago

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Molecular screening for jak2

Does anyone know what molecular screening is please. I’m being tested for jak2

Does anyone know what molecular screening is please. I’m being tested for jak2

•3 years ago

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Need a medical researcher by 5/31 for the ITP study I want done - Eradication of Unidentified Organisms Can Cure Some ITP

Hi, I am looking for a researcher to lead the study "Eradication of Unidentified Organisms through Rife Ultrasonic Therapy and Homeopathics Can Cure Some...

Hi, I am looking for a researcher to lead the study "Eradication of Unidentifie...

•3 years ago

Teeth and Gums

Has anyone had problems with their gums or teeth since being diagnosed with ITP.

Has anyone had problems with their gums or teeth since being diagnosed with ITP....

•3 years ago

NPlate and hair thinning

Hi from a very wet and windy Dartmoor. I’m on nPlate and have been for the past two months, platelets are stable at 123 which is good. Have had a few side...

Hi from a very wet and windy Dartmoor. I’m on nPlate and have been for the past...

•3 years ago

Please help........new patient

Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I...

Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolad...

•3 years ago

ITP Support Association on YOU TUBE

A reminder that we have lots of helpful, informative films on all things ITP available via our You Tube Channel at the following link Some of these films have...

A reminder that we have lots of helpful, informative films on all things ITP ava...

•3 years ago

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ITP SUPPORT ASSOCIATION CONVENTION - ALL PRESENTATIONS NOW FREE TO VIEW

It is almost a week since we had over 500 people registered from over 30 countries for our Annual Convention held online on May 8th and 9th. It was a truly...

It is almost a week since we had over 500 people registered from over 30 countri...

•3 years ago

High platelets of 490 should be 400

Hi everyone,truly hope you’re all well. My gp said my blood showed suspected thrombocytopenia and I was to see haematology. I had my phone appointment today...

Hi everyone,truly hope you’re all well. My gp said my blood showed suspected thr...

•3 years ago

Effects of count dropping

My Revolade got stopped 3 weeks ago as count had gone to 451 and more risk of a bloodclot on drug with count above400. My count has dropped now to 341 and I'm...

My Revolade got stopped 3 weeks ago as count had gone to 451 and more risk of a ...

•3 years ago

ITP Support Association Annual Convention

I would like to thank all the medical advisors , and everyone involved in putting on the ITP Support Association Annual Convention this weekend. It was...

I would like to thank all the medical advisors , and everyone involved in puttin...

•3 years ago

Confusion/Dismay/Fear/Anger - Am I justified?

On 17th October 2017 I started bleeding heavily from my mouth, every day upon awakening and it still continues today, 6th May 2021. Historically I have a...

On 17th October 2017 I started bleeding heavily from my mouth, every day upon aw...

•3 years ago

Covid vaccine ITP and spleenectomy

In two days im getting my vaccine, my specialist want me to get it but says theres not much data on people with spleenectomy getting it.. Anyone of you in my...

In two days im getting my vaccine, my specialist want me to get it but says ther...

•3 years ago

Am confused

Hi my specialist has asked my GP to book me up a gastric investigation even tho never mentioned it to me at last consult as was talking about an IV iron...

Hi my specialist has asked my GP to book me up a gastric investigation even tho ...

•3 years ago

WILL YOU JOIN US NEXT WEEKEND ?

This time next week we will be welcoming guests ONLINE from across the Globe to our Annual ITP Convention. Starting on Saturday May 8th at 10am GMT and Sunday...

This time next week we will be welcoming guests ONLINE from across the Globe to ...

•3 years ago

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