Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,091 members • 2,077 posts

All posts for July 2020

Splenectomy didn’t work now what?

Had splenectomy 10 weeks ago platelets were normal till today was down to 50000. I knew going in was only 50% chance of curing but my Dr recommended and so I...

Had splenectomy 10 weeks ago platelets were normal till today was down to 50000....

Lawcomo

•4 years ago

35 Replies

Childhood ITP more prone to adult CLL?

My oldest daughter had ITP at age 7. After all other treatments failed, the last resort, steroids, cleared her up. That was 1990. 2020 and now I have CLL/SLL....

My oldest daughter had ITP at age 7. After all other treatments failed, the last...

Hidden

•4 years ago

4 Replies

Can ITP lead to Erectile dysfunction??

Personal but important question can ITP lead to early ED Erectile dysfunction??

Herkules56

•4 years ago

1 Reply

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ITP SPLENECTOMY vs

Hi I live in Western Australia & have had ITP for about 8 yrs. My platelets have gradually been dropping & currently sit around 5 or under (1 this week). I am...

Hi I live in Western Australia & have had ITP for about 8 yrs. My platelets have...

Jesse150

•4 years ago

5 Replies

Heavy arms

I am trying my best to up the levels of my exercise in this time of Covid and home working, bearing in mind my energy and platelet levels. I’m noticing that...

I am trying my best to up the levels of my exercise in this time of Covid and ho...

Sewandstitch

•4 years ago

4 Replies

What treatment can I ask for?

Hi, I’d be grateful for some advice. I have mild ITP, with a platelet count of around 40. I’m very lucky in that I’ve never needed treatment - until now. I...

Hi, I’d be grateful for some advice. I have mild ITP, with a platelet count of a...

Lola_M

•4 years ago

18 Replies

4 years Post Splenectomy

In August we will be 4 years post splenectomy. In summer 2017 my then 10 year old brother had had his spleen removed. he went from. one of the most severe...

In August we will be 4 years post splenectomy. In summer 2017 my then 10 year ol...

Nidazainab

•4 years ago

7 Replies

japanese have a drug for i t p

i ran across it on line months ago and lost the name .. i think it began with har ?? anyone know of it ?? from what i read about it really works and i seen...

i ran across it on line months ago and lost the name .. i think it began with h...

rizzo1018

•4 years ago

5 Replies

Spleen removal

My daughter 28 was terrified to have her spleen removed and went through hell in for 1 yr. blood work was checked every week, besides the prednisone in...

My daughter 28 was terrified to have her spleen removed and went through hell i...

Espomom

•4 years ago

1 Reply

Eltrombopag vs Romiplostim

Has anyone had BOTH of these drugs? I am considering asking my haematologist if I can switch (after being on eltrombopag for 3 months) to Romiplostim. I see...

Has anyone had BOTH of these drugs? I am considering asking my haematologist if...

Gabriella28

•4 years ago

6 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for July 2020

Splenectomy didn’t work now what?

Childhood ITP more prone to adult CLL?

Can ITP lead to Erectile dysfunction??

ITP SPLENECTOMY vs

Heavy arms

What treatment can I ask for?

4 years Post Splenectomy

japanese have a drug for i t p

Spleen removal

Eltrombopag vs Romiplostim

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive