Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,091 members • 2,077 posts

All posts for August 2018

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Jaxter1938

•6 years ago

1 Reply

Too many decisions

Hi everyone, I'm looking for some advice? I've had ITP for 3 years now, first started on preds, ivg, rixtimab, and nplate. N plate does work for me but...

Hi everyone, I'm looking for some advice? I've had ITP for 3 years now, first st...

Jenniferitp

•6 years ago

15 Replies

Not really low, comparitivlely?

About a year ago, I had a bad cough, that lasted 4 months. It was a deep, congested cough, with a lot of phlegm. I ended up going to a pulmonologist, who...

About a year ago, I had a bad cough, that lasted 4 months. It was a deep, conges...

hartscarena61

•6 years ago

3 Replies

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Constant borderline

Hi everyone, I apologise if this is the wrong place. Basically on and off for a few years now I have had “low platelets” not not “low enough”, they do...

Hi everyone, I apologise if this is the wrong place. Basically on and off for...

Ash24601

•6 years ago

24 Replies

Itp treatment

Hi . I developed Itp 5.5 month ago. I know I have it after a stressful episode of my life 😐 Now , during this time I've been reading articles about Itp....

Hi . I developed Itp 5.5 month ago. I know I have it after a stressful episode ...

s00rena

•6 years ago

3 Replies

Chronic itp

My mother 57 yrs old has been suffering from chronic refreactory itp she is very optimist n highly will powered to against any odds she used to hav low...

My mother 57 yrs old has been suffering from chronic refreactory itp she is very...

sreea_dey90

•6 years ago

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Low platelet count

My brother has suffered itp since he was 14year old now he is 24 till he has low platelet count help me

My brother has suffered itp since he was 14year old now he is 24 till he has low...

Bhagirath

•6 years ago

2 Replies

High end infusion

Hi all What is high end infusion ? The doctors have called me into the hospital even though my platelet count is at 64. Please advise I’m scared

Hi all What is high end infusion ? The doctors have called me into the hospit...

Shielz

•6 years ago

13 Replies

Treatments

What treatments have you used and were they effective? Our hemo says there are two options for my son aged 2. Steriods or IVIG. Steroids failed us and we are...

What treatments have you used and were they effective? Our hemo says there are t...

Shoni89

•6 years ago

13 Replies

Symptoms

Hi all had appointment with my consultant today asked if my aching joints, tiredness, insomnia was at all connected to having itp he seems to think not! Also...

Hi all had appointment with my consultant today asked if my aching joints, tired...

Castle155

•6 years ago

11 Replies

Severe ITP problem..6 months baby

Hi, My baby suffer from ITP from last three months. My Baby born on 1st February 2018 with cesarean delivery. Birth time baby active no other side effects....

Hi, My baby suffer from ITP from last three months. My Baby born on 1st February...

ArjunBangalore

•6 years ago

1 Reply

Hi

Hi I'm 38 I have itp and I've had it for 14 years I've only had treatment once when first diagnosed drs think I might have had it longer, I found out I had itp...

Hi I'm 38 I have itp and I've had it for 14 years I've only had treatment once w...

Vickymm

•6 years ago

9 Replies

Sources for latest medical research on ITP

What are some good websites/sources to follow to keep up with the latest medical research on ITP?

What are some good websites/sources to follow to keep up with the latest medical...

PS1976

•6 years ago

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Nplate didn't has any effect

My wife had an inject of Nplate 5 days ago Her platelets count was 76 before inject Now after 5days of inject she has 72 count of platelete It seem Nplate...

My wife had an inject of Nplate 5 days ago Her platelets count was 76 before inj...

hamid_80386

•6 years ago

7 Replies

Enlarged spleen

My son was first diagnosed with ITP in 2016 with platelets in 4 ; he was 17 years old.He was in the hospital for 2 weeks and received IVIG and winRho. The...

My son was first diagnosed with ITP in 2016 with platelets in 4 ; he was 17 year...

Buickriviera88

•6 years ago

3 Replies

Ayurveda/Homeopathy for ITP

Has anybody tried Ayurveda/Homeopathy for ITP? Any success stories/recommendations?

Has anybody tried Ayurveda/Homeopathy for ITP? Any success stories/recommendatio...

PS1976

•6 years ago

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Amy Myers diet

Has anybody tried the 30-day diet from Dr. Amy Myers' book 'The Autoimmune Solution'? Any luck with the diet for platelets number increasing or stabilizing?

Has anybody tried the 30-day diet from Dr. Amy Myers' book 'The Autoimmune Solut...

PS1976

•6 years ago

4 Replies

7 weeks on revolade/promacta and no change, ITP 6 year old

Hi my 6 year old son is on revolade/promacta for 7 weeks now, 75mg daily and his count hasn't increased. He is steady at 10k-15k each week. No side affects...

Hi my 6 year old son is on revolade/promacta for 7 weeks now, 75mg daily and h...

kyriacouathos

•6 years ago

2 Replies

ITP the gift that keeps on giving.

Well had a few issues with my vision recently so went and had an eye test . To be told that I have cataracts in my eyes 👀 cause by the steroid treatment I...

Well had a few issues with my vision recently so went and had an eye test . To b...

ellaco

•6 years ago

3 Replies

Muscle Aches?

Do any of you with ITP, also suffer with muscle pains and is there a name for this? sometimes I really struggle with aches if I have walked far

Do any of you with ITP, also suffer with muscle pains and is there a name for th...

Monty55555

•6 years ago

8 Replies

Remission on eltrombopag

Has anyone here experienced a remission while taking eltrombopag (revolade, promacta). I was put on the drug a year ago after some very low platelet counts...

Has anyone here experienced a remission while taking eltrombopag (revolade, prom...

prudencepayes

•6 years ago

2 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for August 2018

Weather today

Too many decisions

Not really low, comparitivlely?

Constant borderline

Itp treatment

Chronic itp

Low platelet count

High end infusion

Treatments

Symptoms

Severe ITP problem..6 months baby

Hi

Sources for latest medical research on ITP

Nplate didn't has any effect

Enlarged spleen

Ayurveda/Homeopathy for ITP

Amy Myers diet

7 weeks on revolade/promacta and no change, ITP 6 year old

ITP the gift that keeps on giving.

Muscle Aches?

Remission on eltrombopag

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive