Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,088 members • 2,077 posts

All posts for August 2017

Interesting hmmm

My platelets have hovered for 12 months or so between 20 /40 not concerned only numbers two weeks I had a viral infection when I had my bloods last week 32...

My platelets have hovered for 12 months or so between 20 /40 not concerned only ...

•7 years ago

Campath/ Alemtuzumab

Hi Has anyone been treated with the above medication (I have given both names for it). If you have how was it?and did it work for you? I think I am running out...

Hi Has anyone been treated with the above medication (I have given both names fo...

•7 years ago

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Viral infection

Had my bloods done today and my platelets are up wow 89 so happy : ) what happened you ask ? Well I had a viral infection apparently your platelets can go up...

Had my bloods done today and my platelets are up wow 89 so happy : ) what happ...

•7 years ago

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Promacta/Revolade not working now

Hi All, I had tried Revolade in India 4 yrs back once(for 15 days) and 2 yr back once(15 days). Both times, my count had raised to 50k first time and 80k 2nd...

Hi All, I had tried Revolade in India 4 yrs back once(for 15 days) and 2 yr back...

•7 years ago

Power Nap

Same time every day since I was diagnosed with ITP I find I need a power nap why it is called this I never know I never feel powerful when I wake just wanted...

Same time every day since I was diagnosed with ITP I find I need a power nap why...

•7 years ago

Stay positive x

Hi I had itp years ago and after so long thought I was home and dry. It has returned however, I'm trying to be positive. I have debilitating fibromyalgia which...

Hi I had itp years ago and after so long thought I was home and dry. It has retu...

•7 years ago

Eltrombopag (responses in children ITP)

My 4 year old daughter had been taking eltrombopag since March. Prior to this she tried rituximab and prednisone with no success. Platelets had always been...

My 4 year old daughter had been taking eltrombopag since March. Prior to this sh...

•7 years ago

HUGE DROP❗️

I took the Rutuxan treatment back in Dec. and have had my blood tested every 4 weeks the past 4 months. Until now my platelet numbers have increased to...

I took the Rutuxan treatment back in Dec. and have had my blood tested every 4 w...

•7 years ago

Nplate causing "giant platelets"

Had anyone else had "Giant Platelets : Present" on their labs after just starting Nplate? Anyone at all? Trying to find out why this is happening and if it is...

Had anyone else had "Giant Platelets : Present" on their labs after just startin...

•7 years ago

Hope for curing

My daughter in law suffers now in ITP. She was diagnose just past 1 month ago. I am not familiar with this ITP. Is this illness curable? Her platelets going...

My daughter in law suffers now in ITP. She was diagnose just past 1 month ago. I...

•7 years ago

Thoughts please

My consultant is looking at putting me on Revolde ( 4 week trial ) I have all the information beforehand to read I am asking for peoples experiences side...

My consultant is looking at putting me on Revolde ( 4 week trial ) I have all th...

•7 years ago

That lonely feeling

Found out today that yet another dr has refused my case. That makes 6 hematologist and two internal medicine Dr. I really haven't felt so alone with no where...

Found out today that yet another dr has refused my case. That makes 6 hematologi...

•7 years ago

Child with history of ITP gradual reduction in platelet count

My daughter was diagnosed with ITP at 14 months old after a vaccination. She had low platelets for approximately 2-3 years before she gradually regained normal...

My daughter was diagnosed with ITP at 14 months old after a vaccination. She had...

•7 years ago

HELP!!!

Hello everyone, I personally dont have itp the reason i am on here is my girlfriend has itp. i have know about the itp since we first started dating 2 years...

Hello everyone, I personally dont have itp the reason i am on here is my girlfri...

•7 years ago

ITP , 6000 - 23000 platelet count, Age 69

Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to...

Need proper diagnosis for my problem. 1. Initially when hospitalized not able to...

•7 years ago

ITP & MS

Any ideas on good painkillers having problems with pain can't take a lot of painkillers.

Any ideas on good painkillers having problems with pain can't take a lot of pain...

•7 years ago

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It's a rollercoaster

It's been a month, so time for an update. At my last post my count had gradually increased to 32 and i was happy to be coming off the prednisolone (it wasn't...

It's been a month, so time for an update. At my last post my count had graduall...

•7 years ago

Hi I'm new this is my story, well up to now!

Hi everyone I'm new and this is my first post! It's been a bit of a bumpy ride this last 2 or 3 years or so. December 11th 2013, I remember it well, I was...

Hi everyone I'm new and this is my first post! It's been a bit of a bumpy ride t...

•7 years ago

Ear piercing

Hi all Our 13 year old daughter is 12 months into her ITP journey. No success with steroids or chemo although Eltrombopag has really suited her and has...

Hi all Our 13 year old daughter is 12 months into her ITP journey. No success w...

•7 years ago

Medical bracelet

How low should your platelets be with ITP before wearing a medical bracelet?

How low should your platelets be with ITP before wearing a medical bracelet?

•7 years ago

Wrist bands

Hi all, just joined and would like some wrist bands, how do I buy them please?

Hi all, just joined and would like some wrist bands, how do I buy them please?

•7 years ago

Thoughts please

Do you think age plays a part in Itp ITP .

Do you think age plays a part in Itp ITP .

•7 years ago

Results

My platelets are now 42 after having bloods today ( dropped since ivig as it was a short term solution ) I am not too concerned my hemotologist mentioned we...

My platelets are now 42 after having bloods today ( dropped since ivig as it was...

•7 years ago

how to live with ITP

my wife 37 yrs we have 2 cute kids she diagnose itp an year ago lots of cries worriedness prayers lots of steriods other medication but all invain now since...

my wife 37 yrs we have 2 cute kids she diagnose itp an year ago lots of cries wo...

•7 years ago

Exhausted

I find itp is leaving me exhausted I just want to rest working full time is getting to be a issue I feel there is a alien in my body in some respect there is...

I find itp is leaving me exhausted I just want to rest working full time is gett...

•7 years ago

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