Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,087 members • 2,077 posts

All posts for June 2017

Back pain

I was diagnosed with ITP over a year ago. Also had a bone marrow sample taken. Recently I have pain in various parts of my back. I'm paranoid :-( anyone have...

I was diagnosed with ITP over a year ago. Also had a bone marrow sample taken. R...

•7 years ago

Platelets down to 3,000

my mom has had ITP for 3 years. She has had any types of treatment, that only work for a short time. The latest was having her spleen out. Now she is down to...

my mom has had ITP for 3 years. She has had any types of treatment, that only wo...

•7 years ago

Travelling to high altitude area

I'm planning trip for northern areas . I have been to high altitude before many times ,but no problem i face but now this time. i'm going for higher altitude...

I'm planning trip for northern areas . I have been to high altitude before many ...

•7 years ago

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Progress

I went back to the Haemotologist for the second week yesterday since this last post:...

I went back to the Haemotologist for the second week yesterday since this last p...

•7 years ago

Rituximab

Hi Has anyone had full dose rituximab for their itp. (I have had the itp dose with no success so consultant wants to give full dose) if anyone has had full...

Hi Has anyone had full dose rituximab for their itp. (I have had the itp dose wi...

•7 years ago

Cronic ITP

Iam 49 staying in jharkhand , Last year in April Cronic ITP diagnosed while routine blood check up at PARAS HOSPITAL, PATNA. 80 mg wysolone daily...

Iam 49 staying in jharkhand , Last year in April Cronic ITP diagnosed while ro...

•7 years ago

ITP and Neutropenia

Does anyone have or know anyone who has both of these disorders at the same time? I'm living with both since diagnosis two months ago and am finding balancing...

Does anyone have or know anyone who has both of these disorders at the same time...

•7 years ago

Good hematologist in London

Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , started with small dots on his body and when we did the CBC test his platelets...

Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , s...

•7 years ago

MPV

Does anyone watch their MPV and is that also a concern ? Mine is slightly lower than average

Does anyone watch their MPV and is that also a concern ? Mine is slightly lower ...

•7 years ago

9 year old with ITP

Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two bottles of ivig and platelet count was still at 4. had another two bottles of...

Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two b...

•7 years ago

Platelet drop while on steroids. Is this normal

Newly diagnosed ITP . Hemotologist put me on dexamethasone 4 day and count up to 120000. I then crashed to zero 3 days later. Did another 4 day pulse and went...

Newly diagnosed ITP . Hemotologist put me on dexamethasone 4 day and count up to...

•7 years ago

The drugs dont work..... Well prednisolone anyway

I went back to the Haematologist last week knowing things could only get worse, I felt great and had no symptoms (of ITP, thanks to prednisolone I'm writing...

I went back to the Haematologist last week knowing things could only get worse, ...

•7 years ago

CAN I GET TEETH REPLACED WITH ITP

HI YES LOOKING AT GETTING APP 12 TEETH REPLACED BUT IAIT OK WITH ITP

HI YES LOOKING AT GETTING APP 12 TEETH REPLACED BUT IAIT OK WITH ITP

•7 years ago

Got to give up work due to Itp

Looking for help , I am a 57 yr old male who until 7 months ago had been fit and healthy until itp struck . I have had various treatments , and am currently on...

Looking for help , I am a 57 yr old male who until 7 months ago had been fit and...

•7 years ago

ITP for a 5-month-old baby

Hi, Has anyone here has a 5-month-old child diagnosed with ITP? How is the treatment going? Im from the Philippines. TY

Hi, Has anyone here has a 5-month-old child diagnosed with ITP? How is the treat...

•7 years ago

1 month in

one month in and i am in a much better frame of mind than i was at the beginning, I generally feel much better than i have for a long time despite the...

one month in and i am in a much better frame of mind than i was at the beginning...

•7 years ago

my story so far..

I thought it was about time i put my experiences on here for people looking for information like i was a month ago, the story so far... I'm 37 years old and in...

I thought it was about time i put my experiences on here for people looking for ...

•7 years ago

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Medication

Hi Does anyone else find the treatment for ITP worse than ITP itself ? I have been on various treatments for 2 years now and so far nothing has worked...

Hi Does anyone else find the treatment for ITP worse than ITP itself ? I have be...

•7 years ago

Bad day...

ITP... medication to treat it... chronic fatigue that comes with it... I normally put a brave face on it... get on with it. I don't let family and friends...

ITP... medication to treat it... chronic fatigue that comes with it... I normall...

•7 years ago

ITP Support Association Annual Convention

Our recent Annual Convention was held on May 13th at the Royal Society of Medicine in Central London. This year marked our 20th such Annual Convention and you...

Our recent Annual Convention was held on May 13th at the Royal Society of Medici...

Administrator•7 years ago

is it healthy dangerous when platelet count is 35000?

hello there,my platelet count is 35000 is it too dangerous ? but I feel normal .sometimes I feel tired bit sometimes I feel energies .what can i eat?what...

hello there,my platelet count is 35000 is it too dangerous ? but I feel normal ....

•7 years ago

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