Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,092 members • 2,077 posts

All posts for May 2017

PETICHIAE

IM SCARED. WHAT IS THIS????

IM SCARED. WHAT IS THIS????

nicoleeeeeeeeeeeee

•7 years ago

Holiday woop woop

Time to forget about platelets ,bruises, nosebleeds, and ITP if a couple of weeks in the sun can help I am all for it .... Keep well and tell yourself your...

Time to forget about platelets ,bruises, nosebleeds, and ITP if a couple of week...

•7 years ago

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Itp

Hi I have recently been diagnosed with itp and i had the ivig treatment a week and half ago as my levels had dropped to 2 after the infusion levels went up to...

Hi I have recently been diagnosed with itp and i had the ivig treatment a week a...

•7 years ago

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Result bone marrow biopsy

My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we know always a but it is ITP unkown my hemotologist told me my immune system is...

My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we ...

•7 years ago

Claiming PIP

Hello Has anyone based in the UK applied for and been successful with an application for PIP (Personal Independence Payment)? Also... do you only have ITP or...

Hello Has anyone based in the UK applied for and been successful with an applica...

•7 years ago

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Fitness and ITP

Hi all, Just wondering if anyone has noticed any relation to their platelet levels and fitness? I've had ITP on and off since 2012, the 3 episodes I have...

Hi all, Just wondering if anyone has noticed any relation to their platelet le...

•7 years ago

Itp

My wife aged 32 year suffer frm ipt i.e platlets decresas to 6000 now treatment is stated but she feel fatigue and tiredness after noon and did nt tak medicin...

My wife aged 32 year suffer frm ipt i.e platlets decresas to 6000 now treatment ...

•7 years ago

Papaya Leaf Extract Juice

What amount is anyone taking daily. I have read that one tablespoon two or three times a day is recommended on the bottle. Anyone had success with a smaller...

What amount is anyone taking daily. I have read that one tablespoon two or thre...

•7 years ago

Splenectomy

Hello every one I have a question for those of you who have gone through a splenectomy. Have any of you had issues in getting alot of infections? Reacurring...

Hello every one I have a question for those of you who have gone through a splen...

•7 years ago

Uncle with ITP

Hello. Good morning. My uncle,46, was first diagnose of Dengue fever last week with platelet count of 4,we did blood transfusiib last Saturady,5 bags. His...

Hello. Good morning. My uncle,46, was first diagnose of Dengue fever last week w...

•7 years ago

Holiday woop woop

I am so excited my holiday is nearly here not letting platelet counts or itp get in the way of me getting onto that plane and doing absolutely nothing for...

I am so excited my holiday is nearly here not letting platelet counts or itp ge...

•7 years ago

13 yr old soccer girl w/ITP

My girl was diagnosed last month after her platelet counts were discovered at under 10. Had IVIG. Yesterday had more blood test and they are even lower. She's...

My girl was diagnosed last month after her platelet counts were discovered at un...

•7 years ago

Fed up . com

I try to be positive and acknowledge that ITP isn't the worst thing that could happen... but right now I'm cheezed off! I've had a head cold for a week and my...

I try to be positive and acknowledge that ITP isn't the worst thing that could h...

•7 years ago

Spleen out and Tonsils Out

I'm Currently on N Plate, and have been told this if this doesn't work I will be having my spleen out, I have heard someone say that they have had their spleen...

I'm Currently on N Plate, and have been told this if this doesn't work I will be...

•7 years ago

Live life

My daughter Leah age 5 had her bloods done today at a&e her platelet count is 2, Dr's didn't seem concerned, poor wee thing is exhausted and covered in bruises...

My daughter Leah age 5 had her bloods done today at a&e her platelet count is 2,...

•7 years ago

Sandimmun 100mg with Prednisone

Hi guys, has anyone taken Sandimmun 100mg Neoral while taking Prednisone?What are the side effect & does it work for platelets?I went for my 1st visit to...

Hi guys, has anyone taken Sandimmun 100mg Neoral while taking Prednisone?What ar...

•7 years ago

Does Flu and Colds makes the platelet count drops to low level?

My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went...

My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol...

•7 years ago

spleen removal

is ITP permanently curable with spleen removal?

is ITP permanently curable with spleen removal?

•7 years ago

UGG...LIFE

Hi, im a 25 year old female, working as a nurse with 2 children. I was diagnosed in 2010 with ITP and Lupus. My count had dropped down to 3. Only real symptom...

Hi, im a 25 year old female, working as a nurse with 2 children. I was diagnosed...

•7 years ago

Cost of indium test?

Can anyone please tell me approx cost of indium test bcoz i am looking forward to fly to london from india for test

Can anyone please tell me approx cost of indium test bcoz i am looking forward t...

•7 years ago

Is weightloss healthy with itp??

I was already obese before itp and now bcoz of steroids my weight gained again and i am looking forward for weightloss . So is it healthy? Bcoz my count goes...

I was already obese before itp and now bcoz of steroids my weight gained again a...

•7 years ago

Ivig ..... Bone marrow biopsy

Well I had my ivig as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my ivig came down with a...

Well I had my ivig as luck would have it I had a reaction ( HCA mentioned it was...

•7 years ago

Stool Test with ITP

Hello All, I recently had stomach issues and I was negative for all food intolerence/allergy test doctors did. Now I got Stool test done and takes 3-4 weeks to...

Hello All, I recently had stomach issues and I was negative for all food intoler...

•7 years ago

My ITP story at 14 years old. And it is now back at 21?

I got diagnosed with ITP after a flight to Gran Canaria in which I woke up after 4 hours with a completely swollen face, lips huge and eyes like peas. I went...

I got diagnosed with ITP after a flight to Gran Canaria in which I woke up after...

Cheshirecharlotte

•7 years ago

PETICHIAE

HELLO ALL!! DO YOU GUYS ALSO GET PETICHIAE'S ALL THE TIME? SEEMS LIKE IT'S NEVER LEAVING ME. OR IS THERE ANY OTHER WAY TO GET RID OF THESE?

HELLO ALL!! DO YOU GUYS ALSO GET PETICHIAE'S ALL THE TIME? SEEMS LIKE IT'S NEVER...

nicoleeeeeeeeeeeee

•7 years ago

Chickenpox twice ??

Is it possible to get chicken pox twice if you haven't got a spleen. I had mine removed 25 years ago because of my ongoing ITP and my fourteen year old son has...

Is it possible to get chicken pox twice if you haven't got a spleen. I had mine ...

•7 years ago

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