Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,088 members • 2,077 posts

All posts for August 2016

Grandson and Dog both have ITP

My grandson was diagnosed with ITP in Dec of 2015 he was 2 months shy of his 3rd birthday. He is an identical twin. My grandson woke up in a pool of blood...

My grandson was diagnosed with ITP in Dec of 2015 he was 2 months shy of his 3rd...

lilredphoenician

•8 years ago

Extremely Low Platelets

Hi, my sister in law is in the hospital in Florida and her platelet number is 4-8 and they can not get it up and even after a bone marrow biopsy can not figure...

Hi, my sister in law is in the hospital in Florida and her platelet number is 4-...

•8 years ago

Spleen Scan

Below is the information I received regarding a spleen scan. The typical platelet study entails the following: 1. We take a small volume (approx 50 ml) of...

Below is the information I received regarding a spleen scan. The typical plate...

ITP_September_2014

•8 years ago

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Platelet Count

Friday, August 26th my count was 29. I didn't receive my Nplate shot for two weeks which caused my count to drop significantly.

Friday, August 26th my count was 29. I didn't receive my Nplate shot for two wee...

ITP_September_2014

•8 years ago

Cigarettes and ITP

I was a smoker... stopped on 6 July this year... just wondering if this could be causing my platelet count to drop?

I was a smoker... stopped on 6 July this year... just wondering if this could be...

•8 years ago

Where did they go???

So much for my count of 109... Count today 58... wiped the smug smile of my wee face... Ho hum... 😕

So much for my count of 109... Count today 58... wiped the smug smile of my wee ...

•8 years ago

Nplate

Today I'm taking another vacation day for a dr. visit. I haven't had my Nplate shot in two weeks. I'm starting to feel sluggish, developing Petechia spots,...

Today I'm taking another vacation day for a dr. visit. I haven't had my Nplate s...

ITP_September_2014

•8 years ago

Vacation / Sick Days

All my vacation and sick days go to Dr visits, colds and naps. I hate feeling like i'll never get my life back if I don't find a cure. How do others manage a...

All my vacation and sick days go to Dr visits, colds and naps. I hate feeling li...

ITP_September_2014

•8 years ago

ITP – Need more options

In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Nplate and a few...

In September 2014 I was diagnosed with ITP. I found out due to a cold and routin...

ITP_September_2014

•8 years ago

Does mmf always improve count slowly?

Hi, have been on mmf (myfenax) for just over 3 weeks, on a dose of 500mg twice a day. Went to haematology clinic on Monday and my platelet count has only gone...

Hi, have been on mmf (myfenax) for just over 3 weeks, on a dose of 500mg twice a...

•8 years ago

Low platelet count of 5

I have been doing so much reading online about my mums case of low platelet count but because her situation is unique I dont really have any affirmative...

I have been doing so much reading online about my mums case of low platelet coun...

•8 years ago

5mg maintennance dose Prednisolone

Hello there I would be interested to hear from anyone who has found that taking a low dose steroid daily keeps their platelets up. I have found a way on...

Hello there I would be interested to hear from anyone who has found that taking ...

•8 years ago

I've got how many?

Had a blood count on Wednesday... I have 109 platelets... the most I've had since January this year. Happy bunny 🐇

Had a blood count on Wednesday... I have 109 platelets... the most I've had sinc...

•8 years ago

Trying out different vitamins

My original count was 33 when o found out I had ITP about 9 weeks ago I looked up many items on ITP and some said diet and vitamins helped. I thought I would...

My original count was 33 when o found out I had ITP about 9 weeks ago I looked ...

•8 years ago

platelets

Hi I have a platelet count of 66 but am on no treatment just wanted some advice as to whether I should be concerned or on any treatment ?

Hi I have a platelet count of 66 but am on no treatment just wanted some advice...

•8 years ago

ITP gone.

Hi,my daughter was diagnosed at age 17 (she is 24 now) with ITP. She was admitted to hospital with platelets counts 6 . The doctor tried different treatments,...

Hi,my daughter was diagnosed at age 17 (she is 24 now) with ITP. She was admitte...

•8 years ago

3 year old diagnosed with ITP

Hi, this is all so new to me. I suppose I am joining this group to hopefully get a further understanding of this blood disorder. My husband and I noticed lots...

Hi, this is all so new to me. I suppose I am joining this group to hopefully get...

•8 years ago

ITP Symptoms after 30 years

When I was 22 years in 1986 I had ITP and had a spleenactamy. Now 30 years later I'm worried my ITP may be coming back. My symptoms before were unexplained...

When I was 22 years in 1986 I had ITP and had a spleenactamy. Now 30 years later...

•8 years ago

Maybe itp??

Since it is so rare to being diagnosed with this desiese I wonder it it's what I really got. Last Friday I noticed little small red dots on my legs (petechia)....

Since it is so rare to being diagnosed with this desiese I wonder it it's what I...

•8 years ago

My Purple Patch - ITP Blog

Please do check out my weekly ITP blog entitled My Purple Patch . I hope that recording my ITP story will help other ITP sufferers and their families better...

Please do check out my weekly ITP blog entitled My Purple Patch . I hope that re...

Administrator•8 years ago

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