Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,090 members • 2,077 posts

All posts for December 2015

Is there any treatment other than steroids

Mu Mother suffering from itp. Age 46.taking steroids leading to lot of side effects. She had her splenectomy. But no effect. I wana to know any ayurvedic...

Mu Mother suffering from itp. Age 46.taking steroids leading to lot of side effe...

•8 years ago

feeling very frustrated.my dear friend was diagnosed w/ITP,then multiple myeloma,then PNH, and now it's aplastic anemia&she's on horse serum

so frustrated.anybody else have any problems getting diagnosed and feeling like doctors are shooting someone u love up with too much shit and testing too...

so frustrated.anybody else have any problems getting diagnosed and feeling like ...

•8 years ago

ITP and Prothrombin Gene Mutation

Anyone else out there who has both ITP and prothrombin gene mutation (Factor II)? I have always had a low platelet counts (normally between 80 - 110). After...

Anyone else out there who has both ITP and prothrombin gene mutation (Factor II)...

•8 years ago

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any advice on prednisolone for kids...

My 9 year old has ITP since he was one. So far no medication ,now at count of 7 heamatologist satrted giving predisolone, Im not sure if its helpful. I want...

My 9 year old has ITP since he was one. So far no medication ,now at count of 7 ...

•8 years ago

second opinions

how do u know when to get a second opinion on a diagnosis? also, how can u know that u havent been misdiagnosed?please help....thanku

how do u know when to get a second opinion on a diagnosis? also, how can u know ...

•8 years ago

Ms

As well as having itp also have ms strange combo.

As well as having itp also have ms strange combo.

•8 years ago

Starting Rituxan..

I start Rituxamab January 7th. We couldn't get me off of the steroids before my count would drop again. How did it affect you? I'm scared to death!! Any advice...

I start Rituxamab January 7th. We couldn't get me off of the steroids before my ...

•8 years ago

New York

I WAS WONDERING ARE THERE ANY MEMBERS LIVING WITH ITP LIVE IN NEW YORK

I WAS WONDERING ARE THERE ANY MEMBERS LIVING WITH ITP LIVE IN NEW YORK

•8 years ago

take it back.... side effects are horrible

Well, it seemed to good to be true. 4 days of Decadron and a shot to stop my menstrual cycle... Monday- Wednesday were fine... but by Thursday all has changed....

Well, it seemed to good to be true. 4 days of Decadron and a shot to stop my men...

•8 years ago

Platelet Disorder Support Association

Has anyone looked up the PDSA. Lots of up-to-date info on ITP.

Has anyone looked up the PDSA. Lots of up-to-date info on ITP.

•8 years ago

finally had to get on steroids...but, it is not bad!

I have been doing anything possible to avoid steroids... from gluten free diet, papaya leaf extract, to Chinese medicine... but Monday I started bleeding... a...

I have been doing anything possible to avoid steroids... from gluten free diet, ...

•8 years ago

IVIG

Has anyone found their joints very sore on IVIG?

Has anyone found their joints very sore on IVIG?

•8 years ago

DENTAL WORK AND SERIOUS ITP

My platelets dropped, according to yesterday's labs, to 32,000 - down 20 points again - in two weeks. I broke a tooth a few days ago, and was scheduled to...

My platelets dropped, according to yesterday's labs, to 32,000 - down 20 points ...

•8 years ago

Spleen

Hi, I was wondering if anyone dealing with itp had an splenectomy done due to itp and do you feel a difference or was it helpful i just like to know some...

Hi, I was wondering if anyone dealing with itp had an splenectomy done due to it...

•8 years ago

Rituximab/Rituxan

Please let me know if anyone has had Rituxan infusions and, if so, how was the experience? My hematologist wants me to have four infusions (one per week for...

Please let me know if anyone has had Rituxan infusions and, if so, how was the e...

•8 years ago

IVIG

Hi, Ive been battling with ITP for a year and the doc have me getting weekly treatments but it dont seem as affective anymore can someone give me advise or...

Hi, Ive been battling with ITP for a year and the doc have me getting weekly tre...

•8 years ago

New member

Hi, Ive been battling ITP for a year now and its overwhelming and stressful I've heard that papaya leaf might help stabilize your counts. Have anyone tried and...

Hi, Ive been battling ITP for a year now and its overwhelming and stressful I've...

•8 years ago

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