Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,091 members • 2,077 posts

All posts for October 2013

Daughter diagnosed June 2011 had severe bleed on brain feb 2013

Hi my daughter was diagnosed in 2011 with itp at age 8. She had a platelet count of between 4-8 over the next year and a half and had no treatment. She had...

Hi my daughter was diagnosed in 2011 with itp at age 8. She had a platelet count...

Princess2002

•10 years ago

8 Replies

Hi Folks,does anyone know if NPlate is an option on PBS in Oz before a splenectomy?

Curious??

Ozjock13

•10 years ago

2 Replies

My daughter has just been diagnosed with itp

Her platelet count was 2 on Saturday, what can the school do to keep her safe , during school hours thanks

Her platelet count was 2 on Saturday, what can the school do to keep her safe , ...

Mentalmads

•10 years ago

9 Replies

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I have had chronic ITP for 10 years I was wondering if it would be safe to have a tongue piercing? since there is many veins in the tongue?

Amirebekah

•10 years ago

4 Replies

Pregnancy and chronic itp

Hi everyone , I was diagnosed with itp at age 21. I am 26 now and pregnant. Baby is perfectly fine thank gd but my counts are not! I am 5 1/2 month now and...

Hi everyone , I was diagnosed with itp at age 21. I am 26 now and pregnant. Baby...

Leahgersh

•10 years ago

11 Replies

Daughter just been diagnosed with tip

Hi my daughter has just been diagnosed with itp, her platelet count is 2 at mo ,we're due to go back in 10 days for a blood test , can anyone tell me what...

Hi my daughter has just been diagnosed with itp, her platelet count is 2 at mo ,...

Mentalmads

•10 years ago

7 Replies

Can Vanishing Twin Syndrome and ITP be connected?

When I was 8 weeks pregnant with my daughter Beibhinn (diagnosed with ITP in Feb 13, at the age of 7 yrs), I had a heavy bleed with no cramps. At hospital they...

When I was 8 weeks pregnant with my daughter Beibhinn (diagnosed with ITP in Feb...

beibhinn

•11 years ago

5 Replies

Hi, I've been in remission for a few months now but have now got sore throat, lost my voice and dry wracking cough along with sore ears.

This was the problem I had when I was first diagnosed with ITP. I'm now worried it could come back but as I also have an underactive thyroid (diagnosed as the...

This was the problem I had when I was first diagnosed with ITP. I'm now worried ...

Vibo

•11 years ago

4 Replies

Nplate

If anyone managed to get Nplate treatment in the UK, how did you go about convincing the doctors? Have you had to fail every single treatment before that?...

If anyone managed to get Nplate treatment in the UK, how did you go about convin...

lc12345

•11 years ago

10 Replies

Hi i was diagnosed last year, Does anyone get really bad headaches and flushes. I also take hormone tablet so it could be them. X

tinkerbelle77

•11 years ago

4 Replies

what is indium screening and what is it used for?

brandy29

•11 years ago

2 Replies

Indium Screening Information?

I have Chronic ITP and am at the end of my rope. My hematologists has talked about spleenectomy and i am leaning towards this. I have heard of Indium Screening...

I have Chronic ITP and am at the end of my rope. My hematologists has talked abo...

savvyj

•11 years ago

4 Replies

To those of you on NPlate, how often is a normal injection, how much and what is the goal set by your doctor as far as count?

My husband was diagnosed in May. Nothing but NPlate raises hiis count. Rituxan, IVIG, platelet transfusions and prednisone were of no real help. I keep...

My husband was diagnosed in May. Nothing but NPlate raises hiis count. Rituxan...

rsmonte

•11 years ago

17 Replies

My 7 year old has been given Rituximab which didnt work however I have noticed a big chang in her behaviour & she is having breathing issues

has anyone else had any of these symptoms

JulieG

•11 years ago

3 Replies

Have just started on Revolade (Eltrombopag) just wondering if anyone has had good result with the drug and if they had any side effects

caza3

•11 years ago

7 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for October 2013

Daughter diagnosed June 2011 had severe bleed on brain feb 2013

Hi Folks,does anyone know if NPlate is an option on PBS in Oz before a splenectomy?

My daughter has just been diagnosed with itp

I have had chronic ITP for 10 years I was wondering if it would be safe to have a tongue piercing? since there is many veins in the tongue?

Pregnancy and chronic itp

Daughter just been diagnosed with tip

Can Vanishing Twin Syndrome and ITP be connected?

Hi, I've been in remission for a few months now but have now got sore throat, lost my voice and dry wracking cough along with sore ears.

Nplate

Hi i was diagnosed last year, Does anyone get really bad headaches and flushes. I also take hormone tablet so it could be them. X

what is indium screening and what is it used for?

Indium Screening Information?

To those of you on NPlate, how often is a normal injection, how much and what is the goal set by your doctor as far as count?

My 7 year old has been given Rituximab which didnt work however I have noticed a big chang in her behaviour & she is having breathing issues

Have just started on Revolade (Eltrombopag) just wondering if anyone has had good result with the drug and if they had any side effects

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive