Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,091 members • 2,077 posts

All posts for May 2013

HI .thaks for answering my question has anyone has side effect from mycophenolate

and are you alowed to fly

farideh

•11 years ago

10 Replies

Is ear piercing ok with ITP?

My daughter wants her ears pierced, but she has ITP and her count is generally between 16 and 22, sometimes lower. Can she get her ears pierced? I've read that...

My daughter wants her ears pierced, but she has ITP and her count is generally b...

grasshopper2000

•11 years ago

4 Replies

Does anyone had second child healthy while the first has had ITP?

Anyone has 2 or more kids?if unfortunately,the first kid has ITP,the second kid will be ok?

Anyone has 2 or more kids?if unfortunately,the first kid has ITP,the second kid ...

maggie2

•11 years ago

10 Replies

Want to take advantage of all our features? Just log in!

CVID and aseptic meningitis

I have been getting infusions of ivig for 16+ years. May have contracted Aseptic meningitis after last treatment. Anyone know of or experienced similar

I have been getting infusions of ivig for 16+ years. May have contracted Aseptic...

Lyndee

•11 years ago

3 Replies

Hi everyone, My haematologist has suggested Revolade as a possible solution to ITP. Has anyone experienced the treatment..

Hi everyone, My haematologist has suggested Revolade as a possible solution to ITP. Has anyone experienced the treatment on long term basis. Any side effects...

Hi everyone, My haematologist has suggested Revolade as a possible solution to...

mahin456

•11 years ago

3 Replies

has anyone had a idium labelling platelet test in India...i cant find out if it is conducted here

dhwani

•11 years ago

5 Replies

I have started romiplosmit 3 weeks ago and my platelet is to 45 from 13... do i have to be on it for rest of my life ? ...

has anyone had any proble with low platelet during the flight? I really need to get away for a week but i have been told i cant travel while my platelet is...

has anyone had any proble with low platelet during the flight? I really need to...

farideh

•11 years ago

5 Replies

how fruitful is splenectomy at 65 years of age..my dad has been itp patient from 8 years

dhwani

•11 years ago

14 Replies

Romoplostin remission

Hi has anyone experienced remission after having Romoplostin? Came off it two weeks ago count still 240!!! Are things looking up or is it just wishfull...

Hi has anyone experienced remission after having Romoplostin? Came off it two we...

healthissue

•11 years ago

8 Replies

Difficulty gettingTravel Insurance with pre exsisting conditions.

Last January my Husband and I were quoted £1100 for two weeks cover for Tenerife due to our combined pre exsisting medical conditions. We then went on to...

Last January my Husband and I were quoted £1100 for two weeks cover for Tenerife...

babsfox

•11 years ago

7 Replies

My wife suffering from ITP with pregnancy

My wife is suffering from ITP, we not know whether she is having this disease before conceiving, She delivered a baby boy 3 years ago with normal delivery...

My wife is suffering from ITP, we not know whether she is having this disease be...

Nasar

•11 years ago

63 Replies

Lynn mc

I found out I had I T P in 1997. We where camping in Wales, my ankle swelled up with getting the air beds done, I had had a few bruises and a few nose bleeds...

I found out I had I T P in 1997. We where camping in Wales, my ankle swelled up ...

lmc167

•11 years ago

5 Replies

Revolade and clotting?

Anyone experienced this side effect? Now I will be treated with Fragmin to dissolve the clotting in the legs. So going from Zero platelets to responding to...

Anyone experienced this side effect? Now I will be treated with Fragmin to disso...

eagle2

•11 years ago

5 Replies

Is there anybody from Bangalore,India?

My son is about 1yr,8months suffering with ITP past 13months. I wish to know does anybody tried Ayurvedic Treatment for this problem. Kindly let me know, I...

My son is about 1yr,8months suffering with ITP past 13months. I wish to know doe...

akreddy1981

•11 years ago

20 Replies

Does anyone else have a very dry mouth on Mycophenolate?

I have been taking Mycophenolate since July last year and in the last few weeks my mouth has become uncomfortably dry. I read the side effects leaflet this...

I have been taking Mycophenolate since July last year and in the last few weeks ...

NickyD

•11 years ago

7 Replies

my prednisolon is withdrawn for last 3 month and now for 2 wek my count is 31k dr want again on prednisolon how can i avoid predni dose.

and what can be done at the period time. at the period time my platelet count gous down.

and what can be done at the period time. at the period time my platelet count go...

madhumita

•11 years ago

7 Replies

Mouth blisters

Hi have been to clinic this week for romoplostim count was 520 on Wednesday took injection 400 yesterday this morning I have small white blister on one side of...

Hi have been to clinic this week for romoplostim count was 520 on Wednesday took...

salmagal

•11 years ago

4 Replies

Search posts

Pinned Posts

See all

Shedding some light on ITP - where to get information

Latest poll

See all polls

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Vote

Topics

All posts(58)

All things ITP Support Association(58)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for May 2013

HI .thaks for answering my question has anyone has side effect from mycophenolate

Is ear piercing ok with ITP?

Does anyone had second child healthy while the first has had ITP?

CVID and aseptic meningitis

Hi everyone, My haematologist has suggested Revolade as a possible solution to ITP. Has anyone experienced the treatment..

has anyone had a idium labelling platelet test in India...i cant find out if it is conducted here

I have started romiplosmit 3 weeks ago and my platelet is to 45 from 13... do i have to be on it for rest of my life ? ...

how fruitful is splenectomy at 65 years of age..my dad has been itp patient from 8 years

Romoplostin remission

Difficulty gettingTravel Insurance with pre exsisting conditions.

My wife suffering from ITP with pregnancy

Lynn mc

Revolade and clotting?

Is there anybody from Bangalore,India?

Does anyone else have a very dry mouth on Mycophenolate?

my prednisolon is withdrawn for last 3 month and now for 2 wek my count is 31k dr want again on prednisolon how can i avoid predni dose.

Mouth blisters

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive