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ITP Support Association

4,088 members • 2,077 posts

All posts for September 2012

FATIGUE and ITP

Regular followers of this forum will no doubt have seen that I have previously published details of research which was funded by the ITP Support Association...

Regular followers of this forum will no doubt have seen that I have previously p...

AnthonyHeard

Administrator•12 years ago

3 Replies

ITP Holiday x

Wouldn't it be great if all ITP sufferers could book a whole hotel for 2 weeks and have a throughly good holiday without being stared at as if your a...

Wouldn't it be great if all ITP sufferers could book a whole hotel for 2 weeks a...

Lynnek

•12 years ago

6 Replies

my 23 month old may be being referred to gosh for treatment, anyone know what treatments may be given?

hi, my son was diagnosed about 5 weeks ago with a count of 10, his highest was 20, but now dropped to 11, currently waiting for the consultant to find todays...

hi, my son was diagnosed about 5 weeks ago with a count of 10, his highest was 2...

lotte2121

•12 years ago

6 Replies

Want to take advantage of all our features? Just log in!

On romiplostin for 5 months. But it seems to work for a month and then count drops and needs increasing. Has anyone had similar experience?

I have been on romiplostin for 5 months. Am now on 5mcg per kilo so half the max dose. But each time it is increased my count seems to go up over a few weeks....

I have been on romiplostin for 5 months. Am now on 5mcg per kilo so half the max...

Hidden

•12 years ago

10 Replies

Has anyone had a change in thyroid function after prednisolone?

I am hypo-thyroidal and on levothyroxine. My last check was back in February at the same time as my ITP diagnosis, and was fine. My GP is now sending me for a...

I am hypo-thyroidal and on levothyroxine. My last check was back in February at ...

regsmum

•12 years ago

2 Replies

my 24yr old son has itp and has booked a plane ticket one way to new zealand for 2 years, havent got a clue about how things work over there

his last bloods done today came back 40, his prednisolone had been dropped to 40 mg 2 weeks ago and his bloods have dropped with it! 2 weeks ago his blood...

his last bloods done today came back 40, his prednisolone had been dropped to 40...

julia1969

•12 years ago

4 Replies

Food Intolerance Study

Has anyone been involved in the Food Intolerance Stuidy? I am very interested in taking part in this but as I believe it is carried out at Cambridge (and I...

Has anyone been involved in the Food Intolerance Stuidy? I am very interested i...

mags4743

•12 years ago

6 Replies

Has anyone had a splenectomy and does it work? I have IVIG every 4 weeks to keep my count up I also have ME (chronic fatigue syndrome).

sgreenhalgh

•12 years ago

14 Replies

Bleeding after Intravenous Immunoglobulin

Hi all, can anyone give me an idea on this. My daughter of 4 was given the intravenous immunoglobulin after being admitted to hospital following a couple of...

Hi all, can anyone give me an idea on this. My daughter of 4 was given the intr...

kelb1975

•12 years ago

10 Replies

Anybody have experience with itp in a 6 month old ?

Our little boy was diagnosed at 3 months old and currently has a count around 20. He's just like his sister developing quickly sitting unaided and trying to...

Our little boy was diagnosed at 3 months old and currently has a count around 20...

Bruiser12

•12 years ago

3 Replies

Indium screening test

Just want to remind people who are considering having a splenectomy that the indium test is available. Any doctor in the country can refer a patient to one of...

Just want to remind people who are considering having a splenectomy that the ind...

Hidden

•12 years ago

16 Replies

My Daughter is due to have the HPV vaccination, is anyone aware of a link between this vaccination and ITP.

My Daughter is due to have the HPV vaccination, is anyone aware of a link between this vaccination and ITP. My Daughters Father has ITP and I am worried that...

My Daughter is due to have the HPV vaccination, is anyone aware of a link betwee...

dizz

•12 years ago

5 Replies

ITP & the cold. x

Hi all.Does anyone have trouble feeling the cold. I'm always cold, even when the suns out. It has to be a heatwave for me to be comfortable. My work colleagues...

Hi all.Does anyone have trouble feeling the cold. I'm always cold, even when the...

Lynnek

•12 years ago

9 Replies

dont know what to do for the best

my daughter is now 13,always had bruising,bleeding joint problems,started playing football for a team,bruising got a lot worse,platelet level dropped lowest 47...

my daughter is now 13,always had bruising,bleeding joint problems,started playin...

Hidden

•12 years ago

4 Replies

Hi does anyone get sore swollen black knuckles? In remission at the minute but last count 2 months ago had dropped from 189 to 157.

Have some small bruising atm but sore swollen black knuckles main problem.

EllaG

•12 years ago

3 Replies

"I AM BRUISE LEE"

Hi i am a 38year old capetfitter from scotland with a platelet count which most of the times doesnt even register when i have my bloods checked,i found out i...

Hi i am a 38year old capetfitter from scotland with a platelet count which most ...

toolski

•12 years ago

18 Replies

Hi I've recently been diagnosed with ITP and wondered what effect this will have on travel insurance? Thanks - great site :)

Vibo

•12 years ago

12 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for September 2012

FATIGUE and ITP

ITP Holiday x

my 23 month old may be being referred to gosh for treatment, anyone know what treatments may be given?

On romiplostin for 5 months. But it seems to work for a month and then count drops and needs increasing. Has anyone had similar experience?

Has anyone had a change in thyroid function after prednisolone?

my 24yr old son has itp and has booked a plane ticket one way to new zealand for 2 years, havent got a clue about how things work over there

Food Intolerance Study

Has anyone had a splenectomy and does it work? I have IVIG every 4 weeks to keep my count up I also have ME (chronic fatigue syndrome).

Bleeding after Intravenous Immunoglobulin

Anybody have experience with itp in a 6 month old ?

Indium screening test

My Daughter is due to have the HPV vaccination, is anyone aware of a link between this vaccination and ITP.

ITP & the cold. x

dont know what to do for the best

Hi does anyone get sore swollen black knuckles? In remission at the minute but last count 2 months ago had dropped from 189 to 157.

"I AM BRUISE LEE"

Hi I've recently been diagnosed with ITP and wondered what effect this will have on travel insurance? Thanks - great site :)

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive