Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,091 members • 2,077 posts

All posts for April 2012

revolade eltromopag

started taking revolade 10 days ago count had went from 1 to 28 when checked on 8th day dont go back to my clinic till another 13 days on day 10 have had small...

started taking revolade 10 days ago count had went from 1 to 28 when checked on ...

•12 years ago

Help with Presyncope

I have been getting episodes of Presyncope for over 2 years. My GP prescribed Fludrocortisone which I can't take due to the bad side effects. I eat a good...

I have been getting episodes of Presyncope for over 2 years. My GP prescribed Fl...

•12 years ago

Since coming off steroids I am having problems walking. I get pains in my legs and feet - has anyone else had these side effects?

•12 years ago

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Hi I have ITP since October and now been prescribed Azathioprine....does anyone have any experience with this drug? Thanks

•12 years ago

International Consensus Report on ITP

If you want to know the upto date thoughts of the medical profession on ITP, treating it, diagnosing it and managing it then the attached report entitled...

If you want to know the upto date thoughts of the medical profession on ITP, tre...

Administrator•12 years ago

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Patient.co.uk

For those of our followers who have not yet discovered the very useful , general health and information site the link will take you directly to Patient.Co.Uk....

For those of our followers who have not yet discovered the very useful , general...

Administrator•12 years ago

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Questions, Questions ????????

As the ITP Support Association Annual Convention is fast approaching on May 12th, I thought that it would be a good idea to remind anyone who is attending the...

As the ITP Support Association Annual Convention is fast approaching on May 12th...

Administrator•12 years ago

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This may be a bit off the wall, but since coming off steroids my skin has become very itchy. Has anyone else had this happen to them?

•12 years ago

Can anyone tell me if dizziness or presyncope is known to be a symptom in ITP?

•12 years ago

Fatigue and ITP

I have posted this item previously, back in December 2011 but for those who have not seen it or may be new to the group it is certainly worth posting again,...

I have posted this item previously, back in December 2011 but for those who have...

Administrator•12 years ago

Herbal , homeopathic and alternative remedies

We are asked regularly about herbal, homeopathic and alternative remedies/cures and the general advice on all of these is to make sure that you discuss in full...

We are asked regularly about herbal, homeopathic and alternative remedies/cures ...

Administrator•12 years ago

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has anyone ever come off romiplostin and maintained a good platelet count

•12 years ago

Does anyone that suffers from I.T.P, have problems with fatigue and tiredness? If so do you take anything to combat this?

•12 years ago

Easy Fundraising

A very simple way to raise funds for the ITP Support Association without doing anything strenuous is to use easysearch.org.uk as your search engine when...

A very simple way to raise funds for the ITP Support Association without doing a...

Administrator•12 years ago

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Does anyone know if homeopathic treatment is known to have any effect on ITP?

•12 years ago

Has anyone on here ever had just a ONE TIME episode of ITP? Since ours was idiopathic, we were told it could go either way.

•12 years ago

Has anyone had a splenectomy and it has not helped ITP? does anyone know any statistics (success rate etc)?

My Husband has had ITP for around 1.5yrs and during this period he has had tried lots of treatments to which none have worked. He has been on Romiplostim for...

My Husband has had ITP for around 1.5yrs and during this period he has had tried...

•12 years ago

Century Cycle Challenge Saturday 5th May 2012

Michelle Robson and her friends will be taking on a cycle challenge on Saturday May 5th to raise funds for the ITP Support Association. To make a donation in...

Michelle Robson and her friends will be taking on a cycle challenge on Saturday ...

Administrator•12 years ago

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Our Son Has Chronic ITP

hi our lille child was diagnosed with ITP in April 2910, he had just turned 3 in the Jan, his platelet count was 3!!! we noticed the bruises then the rash...

hi our lille child was diagnosed with ITP in April 2910, he had just turned 3 in...

•12 years ago

Anyone taking cyclosporine? What side effects have you experienced?

I have been on prednisolone for over 3 months and my platelets are worse now than when I started. As at today they are 10 and my doc. wants me to go on...

I have been on prednisolone for over 3 months and my platelets are worse now tha...

•12 years ago

Food Intolerance and ITP Study Update

As many followers will remember the ITP Support Association has funded a research project being conducted by Addenbrookes Hospital Cambridge into food...

As many followers will remember the ITP Support Association has funded a researc...

Administrator•12 years ago

Eurordis Survey

Eurordis are interested in patient experiences of drugs that have not been licensed for specific conditions, ie drugs like Rituximab/Rituxan and Anti D which...

Eurordis are interested in patient experiences of drugs that have not been licen...

Administrator•12 years ago

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