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ITP Support Association

4,091 members • 2,077 posts

All posts for February 2012

Rare Disease Day tomorrow 29th February

The ITP Support Association are delighted to support International Rare Disease Day and you can follow all the events that are taking place by following...

The ITP Support Association are delighted to support International Rare Disease ...

Administrator•12 years ago

What is the highest platelet count anyone has had? What treatment was given for it and what side effects were suffered?

•12 years ago

Does anyone know a doctor who specialises in ITP. I live in the Greater Manchester Area.

•12 years ago

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Can anyone advise me what the next step may be?

Hi, my daughter was diagnosed in October last year with a platelet count of 3 and is currently on 16, 4 months later. She hasn't had any medication as yet,...

Hi, my daughter was diagnosed in October last year with a platelet count of 3 a...

•12 years ago

Summer Concert in Support of The ITP Support Association

A DATE FOR YOUR DIARIES ...... Saturday 16th June 2012 THE WAVERLEY SINGERS will be performing at All Saints Church, Odiham, Hampshire A...

A DATE FOR YOUR DIARIES ...... Saturday 16th June 2012 THE WAVERLEY...

Administrator•12 years ago

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ITP and Common Variable Immune Disease

The ITP Support Association is aware that a number of ITP sufferers are sometimes diagnosed with Common Variable Immune Disease as well as ITP. We are...

The ITP Support Association is aware that a number of ITP sufferers are sometime...

Administrator•12 years ago

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Has anyone else had memory lapses because of high doses of prednisolone?

I have had two episodes where I have done something and had no recollection of it immediately afterwards. There is a complete memory loss.

I have had two episodes where I have done something and had no recollection of i...

•12 years ago

Has anyone been given eltrombopag?

The rompilostim I have been given has affected my liver and the hospital I am with are considering using eclrombopag - but I understand that can be bad for the...

The rompilostim I have been given has affected my liver and the hospital I am wi...

•12 years ago

What happens if the blood blisters in your mouth burst?

In December 2011 I was given platelet transfusions because I was bleeding from my nose and gums, in fact they had to blue light them to the hospital from...

In December 2011 I was given platelet transfusions because I was bleeding from m...

•12 years ago

I have been admitted to hospital 6 times in the last 15 months. How do you cope when you are frightened by not knowing the next step?

15 months ago I had a platelet count of zero. I was put on prednisolone and my count went up then crashed to 2. I was then given IVIg but got meningitis and...

15 months ago I had a platelet count of zero. I was put on prednisolone and my ...

•12 years ago

I am attending hospital 4 times a week - twice for blood tests and twice for injections of Romiplostim. Is anyone else having to do this?

•12 years ago

Has anyone had a swing in platelets as large as mine? In one week in December my count went from 3 to 968.

•12 years ago

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Has anyone had problems with the ALT ennzyme level in their liver as a result of ITP treatment?

A normal level should be between 5 IU/L and 60 IU/L and my count went up to 1228 IU/L.

A normal level should be between 5 IU/L and 60 IU/L and my count went up to 1228...

•12 years ago

Rare Disease Day 29th February 2012

For how to get involved & support Rare Disease Day go to Rare Disease UK website for details http://www.raredisease.org.uk/ Also you may wish to view the...

For how to get involved & support Rare Disease Day go to Rare Disease UK website...

Administrator•12 years ago

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International Rare Disease Day Wednesday 29th February 2012

ITP is classified as a rare disease with about 3000 to 4000 people in the UK suffering from ITP at any one time. There are 6000 rare diseases overall, with 3.5...

ITP is classified as a rare disease with about 3000 to 4000 people in the UK suf...

Administrator•12 years ago

ITP Support Association Annual Patient Convention & Medical Seminar for Health Professionals.

As previously announced the ITP Support Association are delighted to confirm that the Annual Convention for Patients and the Medical Seminar for Health...

As previously announced the ITP Support Association are delighted to confirm tha...

Administrator•12 years ago

Diamond Jubilee

Today marks the Diamond Jubillee of Her Majesty The Queen. It was sixty years ago today that Princess Elizabeth Alexandra Mary made her accession to the throne...

Today marks the Diamond Jubillee of Her Majesty The Queen. It was sixty years ag...

Administrator•12 years ago

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Casey`s Cause

This is a message which was posted on the Facebook Group of the ITP Foundation and I am delighted to reproduce it here to highlight the wonderful work which is...

This is a message which was posted on the Facebook Group of the ITP Foundation a...

Administrator•12 years ago

More Fund Raising News

A big thank you to Katie Pennington & her supporters for raising £242.50 by selling home made cards, home baked cakes and ITP Support Association logo items....

A big thank you to Katie Pennington & her supporters for raising £242.50 by sell...

Administrator•12 years ago

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