I have Chronic ITP, less than 40K and... - ITP Support Assoc...
I have Chronic ITP, less than 40K and Chronic Migraines, more than 16 severe headaches per month for over a 10 month period. Anyone else?
hi,my daughter aged 13,gets really bad headaches,at the front and back of her head and neck.worse at period time.i suffer migraines but havent got itp,anaemic though. get auras with them ,affects mood as well in both myself and daughter . use those cold gel packs,you can get them from discount shops.pop them in the fridge. daughters eyes go all puffy as well. she has cocodamol as she is 13,but unfortunately just have to wait for it to past. i think i should mention it to your doctor or consultant. i think i will ask doctor about my daughters headaches.good luck,i was taking topiramate for migraines,which helped a lot,prescribed by neurolgist,dont know if gp would prescibe them,you have to take them all the while.i guess as well it depends if you are taking any other medication.my daughter has itp.
Have you been tested for APS.. antiphospholipid syndrome? It's quite common for ITP patients to also have antiphospholipid antibodies. It causes the blood to clot too easily and headaches are one of the symptoms.
APS (Antiphospholipid Syndrome): I'll bring that up at my next appt. Ive been out of commision for the last week recovering from a bad reaction to Tizanidine or Zanaflex. It's taken me almost a week and a half to recover from 2 4mg doses. It seemed have shorted out my nervous system. I actually thought I had a stroke Wed. evening in my sleep. I'm having a MRI today. I still feel reminents of the drug in my system. The new nero placed me on this drug along with my regular 100mg of topamax. Never again... The headaches have calmed down a bit and now its more like ghost headaches. I have also been prescribed Imitrex. It used to work. However, My headaches are changing. What used to work, now doesn't. As I age, my body changes and it seems that we are starting from scratch. So I have been reaching out to my different ITP forums. I have started taking 100mg of magnesium, COQ10, and a B2 to help. I am off of the Tizanidine and I have increases my Topamax to 125mg and will do so every week until reach 200mg nightly. then we will monitor. the Topamax is not good for my platelet count but it seems to help with the headaches. double edged sword??? idk what to do. My doctors go with my suggestions as long as they are sensible and my sysmptoms are managable. my platelet coount seems to stay around 30K or atleast under 50K no matter what so unless I dip under 20k and m itp symptoms become worse... we seem to stay the cousre and monitor.
So I tested positive for 1 of the 3 antibodies for APLAS. My hemo is refering me to specialist. What does this mean? We don't know. There really is not enough information to draw any conclusions at this point but it cannot be ruled out.
Hi, I have ITP and I get a pain in the head from being near tobacco smokers. Other kinds of smoke give no similar effect.
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