Anyone cured or in remission from ITP?

[CDmom]

Has anyone tried and been helped by parasite destroying meds, homeopathics, and or Rife, etc?

Thanks,

Cindy

[Eileen-Emily]

Hi fast answer I don’t know . However when I attend my monthly haematology clinic my reading hovers around 103 and at that stage I inject 30mcg of Romiplostin. The level of my injections has been reducing over the last 2 years they originally started at 210mcg every 3 weeks 4 years ago and I can only attribute the change to 2 years ago I was prescribed Bezafibrate to help stabilise my liver disease PBC. If eventually the level of Romiplostin injections are reduced to zero and I manage to hold on to a level of Platelets 100 without any assistance is it a cure or remission I don’t know but I will ask when I next see my Haematologist at my appointment in August. Good luck CDmom I hope the information is helpful to you.

[CDmom in reply to Eileen-Emily]

Hi Eileen-Emily,Thanks for sharing your story. I am glad you are doing well.

Best,

Cindy

[Zaff in reply to Eileen-Emily]

I have been in remission about 3 years after a course of Ritubimax but have been advised it could come back at any time

[Neolicius]

Hi ,yes I have been cured through Mabthera taken through a drip feed for 8 months now.I took the drip in December 2020.My plates have been over 200 since the drip.

[CDmom in reply to Neolicius]

Hi Neolicius,I am so glad you are doing well. That is great info. Thanks for sharing your story.

Best,

Cindy