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SAVE the DATES for the ITP Support Association Annual Convention

Anthonyh7 profile image
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CALLING ALL ITP FOLK - SAVE THE DATES -

The ITP Support Association Annual Convention 2021 will take place on Saturday May 8th and Sunday May 9th via ZOOM.

Anyone with any interest in ITP may join us for any part of the 2 days BUT you must pre register for the event.

Details of how to register will be released very soon so watch this space !

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Anthonyh7 profile image
Anthonyh7
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itplassne profile image
itplassne

Thank-you for the information, Anthony. Last year's event was very interesting 🙂

Gabriella28 profile image
Gabriella28

Anthony I apologise I am trying to find a way to contact you or the experts on the webinar panel quickly. I am due to have my second Covid vaccine tomorrow afternoon and at the last minute a friend of mine has warned me of long term potential of developing other autoimmune conditions following the vaccine. (As well as ITP I have CRPS). I thought I had calculated it would be better to take the vaccine to be protected from covid and I have listened to the excellent webinar your hosted recently. But I am at a loss once more.

My platelet count seems to have stabilised in the 60’s and I take 50mg/day Eltrombopag. I’ve been told Eltrombopag is NOT an immuno-suppressant and yet it has the effect of dampening down my OVERACTIVE IMMUNE SYSTEM. If I have an overactive immune system and DON’T take Eltrombopag, would that mean I’d have greater protection against Covid-19?

Does taking Eltrombopag put me at greater RISK from either contracting the virus (because it has lowered my immune response) or of developing other autoimmune diseases from the vaccine?

I will speak to the GP before I decide whether to take the jab tomorrow or not. But if you or anyone can offer me any advice at this 11th hour I’d be very grateful.

Anthonyh7 profile image
Anthonyh7 in reply to Gabriella28

If you email ITP Suport Association HQ on info@itpsupport.org.uk they may be able to get an opinion on your query from one of our medical panel. They can then email you back directly.

Gabriella28 profile image
Gabriella28 in reply to Anthonyh7

Thank you Anthony

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