Shedding some light on ITP - where to get information

[AnthonyHeard]

For anyone who has recently been diagnosed with ITP or in fact for any of us who have been in the purple for a while, it does no harm to flag up some of the most useful sources of information.

The links below are to the most reliable , up to date sources, and they are always good to keep handy for reference.

For people like me who have been living with ITP for over 13 years, I can recall just how unsettling and worrying it was when I was first diagnosed.

The following sources of information have been invaluable to me over the years so I fully recommend them to anyone with this mysterious condition.....

1.The ITP Support Association - itpsupport.org.uk also on Facebook, Twitter and Instagram

2.The Platelet Disorder Support Association - pdsa.org also on Facebook, Twitter and Instagram

3.The International ITP Alliance - globalitp.org/index.php

4.Rare Disease UK - raredisease.org.uk also on Facebook, Twitter and Instagram

Hope this all helps.

[virginiabranscom]

Thank you, Anthony! Great reminders about constantly changing information.